PatientShark
new member
I am new to this site. A childhood living with Chronic pain due to Musculoskeletal bilateral sub luxation of both patella since ( age 6 .) I have endured crippling dislocations throughout my childhood and numerous surgical procedures much like some on this forum.
My congenital issue may be one of a 'Cautionary Tale' though I regretfully must inform anyone reading this of the many (REVISION'S) that were required and learing to walk 9 times. My journey of 38 years of chronic pain and Sub luxation knee’s as a child trapped in braces, until adulthood! At the age of 17 to 20 I was challenged with my first of many (Failed Orthopedic Surgical Procedures Re Alignment of both patella's. Your whole life robbed of a normal pain free childhood and expectations of NEW KNEE"S at adulthood with promises of a NEW LIFE!
Maybe a ( Hinged TKR ) was more stable solution for those afflicted with Muscoskelatal deformities of the Patella's ! I have learned through my own personal journey of 'Chronic Crippling Pain' from a sub luxating joint! The regular (TKR) seem to never be stable enough; since so many failed TKR's on both legs! I was never given a choice of a Hinged TKR & was sold on the MakoPlasty; which is worse for recovery than a total knee replacement in my experience!
Presently after two failed MakoPlasty procedures and one failed TKR on left knee, I await another TKR hinged knee replacement 2020 if I can survive them ripping the other Right leg apart again for the 5th time! Right leg had failed TKR, cement failed and replaced 2016; both are so Mal-ligned that they both require (revision Hinged TKR.) I still am rehabilitating walking from my the last two TKR's 2017.
I fear it is about quality of Life anymore and warn others that some of us were meant to be unfixable and are wired since childhood to know suffering! I pray each of you have a support group & have not fallen victim to opioids? If I can suggest something I just discovered an online journal helps one keep your sanity and let your words empower you to be a voice for others too!
Maybe mine may help you? It is a rough draft of realism when it comes to spending half your life learning how to walk and the cruel joke is that in the end the result was a life of continued crippling suffering for myself! Medical retirement at 50 is frustrating and lonely!
Quality of Life is what you must VALUE and find comfort embracing your limitation and let the 'WORD' sustain you in times of great suffering!
My ' SPIDEY SENSE' found this site & maybe others who are going through similar things.
At Age 17 1st Reconstructive knee Surgery
(R) leg 1987 Re Alignment of Patella
(L) leg 1989 Re Alignment of Patella
April 19, 1995 injuries Dr Tkach/ St. Anthony’s sponsored surgical procedure for
(R) leg 1996 V.M.O Transfer
2011 Appendicitis/laparoscopy after care incident occurred result BLUE CODED & 6 day COMA
At age 43 Bone on Bone crippled and now reconstructive surgery required (umpteen Bone Spurs and 80CC drain from knee) both require surgical intervention . A childhood of Life living with metal cages around my legs and painful braces only wired myself to only know that Life with pain is normal.
(L) leg 2012 Makoplasty Partial Knee Replacement
(L) leg 2014 Makoplasty ‘ 1 st Revision Partial Knee Replacement ‘
(R) leg 2016 March Total knee Replacement
(L) leg 2016 August Total Knee Replacement ‘ 2 nd Revision due to Makoplasty revision failure ‘
(R) leg 2017 April Total knee replacement ‘ 1 st Revision 2nd Total knee replacement ‘
(R) 2017 Radio Frequency Abulation procedure!
Dr. Jacob scheduled both Knee Revision's again for 2020 (Hinged TKR)
Presently still learning to walk on my own, because the Hospital physical therapist gave up on me after 3 months! So the last two years due to the mal aligment, I truly never recovered from the last two TKR's.
Now I can hardly drive or walk and am 5'11 and 5'10 on legs and the suffering is grueling; since I refuse opioids the last 12 years. Well' even a 'cat has 9 lives' and this soldier is not sure I can fight the (9th & 10th Knee 'guessing game' Surgeries.)
The psychological trauma of thinking of being cut open again for 8 hours makes me ill & vertigo starts, which then heightens my agoraphobia and I shut the world out!
How and why does the and the FDA allows Surgeon's to get away with 'Breach of Duty" to one's patient 'quality of life' after surgery?
I keep my journal and xrays if this helps anyone can read. I do not do social media and no cell phone and only journal to help us all stay in the battle!
My congenital issue may be one of a 'Cautionary Tale' though I regretfully must inform anyone reading this of the many (REVISION'S) that were required and learing to walk 9 times. My journey of 38 years of chronic pain and Sub luxation knee’s as a child trapped in braces, until adulthood! At the age of 17 to 20 I was challenged with my first of many (Failed Orthopedic Surgical Procedures Re Alignment of both patella's. Your whole life robbed of a normal pain free childhood and expectations of NEW KNEE"S at adulthood with promises of a NEW LIFE!
Maybe a ( Hinged TKR ) was more stable solution for those afflicted with Muscoskelatal deformities of the Patella's ! I have learned through my own personal journey of 'Chronic Crippling Pain' from a sub luxating joint! The regular (TKR) seem to never be stable enough; since so many failed TKR's on both legs! I was never given a choice of a Hinged TKR & was sold on the MakoPlasty; which is worse for recovery than a total knee replacement in my experience!
Presently after two failed MakoPlasty procedures and one failed TKR on left knee, I await another TKR hinged knee replacement 2020 if I can survive them ripping the other Right leg apart again for the 5th time! Right leg had failed TKR, cement failed and replaced 2016; both are so Mal-ligned that they both require (revision Hinged TKR.) I still am rehabilitating walking from my the last two TKR's 2017.
I fear it is about quality of Life anymore and warn others that some of us were meant to be unfixable and are wired since childhood to know suffering! I pray each of you have a support group & have not fallen victim to opioids? If I can suggest something I just discovered an online journal helps one keep your sanity and let your words empower you to be a voice for others too!
Maybe mine may help you? It is a rough draft of realism when it comes to spending half your life learning how to walk and the cruel joke is that in the end the result was a life of continued crippling suffering for myself! Medical retirement at 50 is frustrating and lonely!
Quality of Life is what you must VALUE and find comfort embracing your limitation and let the 'WORD' sustain you in times of great suffering!
My ' SPIDEY SENSE' found this site & maybe others who are going through similar things.
At Age 17 1st Reconstructive knee Surgery
(R) leg 1987 Re Alignment of Patella
(L) leg 1989 Re Alignment of Patella
April 19, 1995 injuries Dr Tkach/ St. Anthony’s sponsored surgical procedure for
(R) leg 1996 V.M.O Transfer
2011 Appendicitis/laparoscopy after care incident occurred result BLUE CODED & 6 day COMA
At age 43 Bone on Bone crippled and now reconstructive surgery required (umpteen Bone Spurs and 80CC drain from knee) both require surgical intervention . A childhood of Life living with metal cages around my legs and painful braces only wired myself to only know that Life with pain is normal.
(L) leg 2012 Makoplasty Partial Knee Replacement
(L) leg 2014 Makoplasty ‘ 1 st Revision Partial Knee Replacement ‘
(R) leg 2016 March Total knee Replacement
(L) leg 2016 August Total Knee Replacement ‘ 2 nd Revision due to Makoplasty revision failure ‘
(R) leg 2017 April Total knee replacement ‘ 1 st Revision 2nd Total knee replacement ‘
(R) 2017 Radio Frequency Abulation procedure!
Dr. Jacob scheduled both Knee Revision's again for 2020 (Hinged TKR)
Presently still learning to walk on my own, because the Hospital physical therapist gave up on me after 3 months! So the last two years due to the mal aligment, I truly never recovered from the last two TKR's.
Now I can hardly drive or walk and am 5'11 and 5'10 on legs and the suffering is grueling; since I refuse opioids the last 12 years. Well' even a 'cat has 9 lives' and this soldier is not sure I can fight the (9th & 10th Knee 'guessing game' Surgeries.)
The psychological trauma of thinking of being cut open again for 8 hours makes me ill & vertigo starts, which then heightens my agoraphobia and I shut the world out!
How and why does the and the FDA allows Surgeon's to get away with 'Breach of Duty" to one's patient 'quality of life' after surgery?
I keep my journal and xrays if this helps anyone can read. I do not do social media and no cell phone and only journal to help us all stay in the battle!
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