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Newbie - introducing myself

Discussion in 'Hip Replacement Pre-Op Area' started by Susan209, Apr 23, 2017.

  1. Susan209

    Susan209
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    Hello lovely forum members,
    it's Sue here. Sorry, this is probably going to be a long(er) post, and you've probably heard it all before, but I feel I need to get this off my chest with someone who will understand. My partner is lovely and supportive, but I doubt he knows what I'm going through...

    So, here goes:

    Up until 4 years ago, I was a competitive kickboxer, training twice a day six days a week and who enjoyed long hikes, running and Pilates "on the side". I'd had sore hips for a while, but attributed that to my training regime with lots of kicking and running on paved roads. Whilst training for a title defense, though, my right hip was getting so bad I could barely stand after training, let alone walk. At this point I went to a physio, who promptly referred me to a hip specialist, thinking I might have labral tears or impingements, or both.
    Two months waiting to see the specialist and not knowing, and one look at the x-rays, and he said "OA" and "Give up kickboxing". Well, it was a relief to finally know what the issue was, but I was devastated to give up kickboxing. :bawl:And running.
    The specialist didn't forbid boxing, so I carried on doing that for a while, and quite successfully, too. But again, I reached a point where I'd go to training and then need a week to get over my sore hip. Bye bye to boxing, and stair work (my running replacement), too. :bawl:
    This was a good year ago, and I'm now at a point where - on bad days - I struggle to walk down the drive way; that's about 50m...

    I've tried physiotherapy, massage and hydrotherapy, as well as NSAIDs and any supplement on the planet that might help. I'm off NSAIDs, as these gave me stomach ulcers, and I am allergic to anything containing paracetamol or ibuprofen. Yay me...:bored:
    As mentioned, I'm not much good at walking anymore, and I'm not sleeping too well, either. Most nights I'll wake up multiple times, until after a few nights of this I'm exhausted enough and get a night with 5-6 hours. I'm forcing myself to go to the gym to do Pilates at least once a week...

    Sooooo, now I'm wondering if there are other youngsters out there who have had resurfacing or replacements done in their late 30s and who might want to share with me. I'm leaning towards resurfacing, but have read that this is generally not an option for females... :chinstroke:I'm seeing my surgeon in two weeks time and will ask his opinion on this.
    Also, any tips on other things to try before committing to surgery are appreciated and tips on how to keep going, as I potentially have a year long wait before I can have anything done anyway...

    Thanks for bearing with me
    Sue
     
  2. Irish Joe

    Irish Joe FORUM ADVISOR Forum Advisor

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    Sue.
    Quite the story. Some of us pay the price for leading active sporting lives. My journey started off much like yours. Pain during and after exercise, supplements, pills and whatever else you like. Then the dreaded "no more impact sports" advice from the Doctor.
    But my journey is a little further along than yours.
    I've had both hips replaced and many of the activities that were taken from me I have begun doing them again.
    I'm firmly in the replacement camp.
    Keep Well.
    Joe.......
     
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  3. Susan209

    Susan209
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    Hi Joe,
    thanks for your reply.
    According to hip specialist, I have unusually deep and tight hip sockets and was going to get OA in my hips before by the age of 40 anyway. High impact sports just hastened things along a bit.
    I am glad to hear that you have been able to return to doing a lot of things you previously couldn't. I'll be asking about sports when I go for my appointment next week... It is one thing that is really doing my head in-not being able to move.
    Cheers
    Sue


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  4. Pumpkln

    Pumpkln FORUM ADVISOR Forum Advisor

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    Susan209,
    Welcome to BoneSmart, glad you joined us!
    You will find many members around your age and younger, Teenage hip replacements .

    Here is the pre op reading,
    If you are at the stage where you are planning to have surgery but are looking for information so you can be better prepared for what is to come, take a look at these links:
    Recovery Aids: A comprehensive list for hospital and home
    Recliner Chairs: Things you need to know if buying one for your recovery
    Pre-Op Interviews: What's involved?
    Longevity of implants and revisions: How long will my new joint last?

    And if you want to picture what your life might be like with a replaced hip, take a look at the posts and threads from other BoneSmarties provided in this link:
    Stories of amazing hip recoveries
     
  5. Susan209

    Susan209
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    Hi Pumpkln,
    thanks for the links and reading material; I hadn't seen the Teenage HR one. Something to look at later.
    I've just finished reading @AussieJoe 's amazing story (yes, alllllll 35 pages); we have the same OS.
    Browsing and reading on BS is making me think that surgery probably isn't as bad as I think it is, even at a younger age.
    Thank you for the support.


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  6. Pumpkln

    Pumpkln FORUM ADVISOR Forum Advisor

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    Here is a score chart you can use to see just how limited your life has become due to the condition of your hips.
    Be sure to take it with you when you see the surgeon so he can see how your hips are impacting your life.

    Score chart: how bad is my arthritic hip/knee
     
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  7. Susan209

    Susan209
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    Oh, this is interesting. Just looked at the questionnaire and discovered I am answering a lot of questions with "depends on the day I'm having" or my answer includes restrictions. Not great. I'll def take this to OS next week, and I will give my partner a copy to fill out, too.


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  8. Susan209

    Susan209
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    Oh, I'm kidding myself thinking "I'm not that bad yet". The Hip Score says otherwise... ☹️


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  9. Pumpkln

    Pumpkln FORUM ADVISOR Forum Advisor

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    We all think we are better than we actually are, as our friends go off hiking, biking, skiing, and all other activities, while we sit on the sidelines..
    Glad the score chart helped clarify just how limited you are with your hips.
     
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  10. Irish Joe

    Irish Joe FORUM ADVISOR Forum Advisor

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    The Hip Score doesn't lie.
    Sometimes we do.
    Joe.....
     
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  11. Jaycey

    Jaycey SUPER MODERATOR Moderator

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    Don't feel bad - this is one reason why this questionnaire was developed. You are far too young to live life on the sidelines. If it were me - I would get that hip replaced and get on with life.
     
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  12. Susan209

    Susan209
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    Thank you guys. Appointment is in a week. Being here and reading about other people's stories makes me think I should indeed just have it done and not wait any longer...


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  13. ScenicRte

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    Hi @Susan209! I'm a newbie too, and while never the competitive athlete that you were, I am very familiar with that strange 'dislocation of reality' feeling that comes with finding out that all your expectations about your body being strong, reliable and pretty much under your control are...not so accurate. Shocking, I know, but here we are.

    I was really offended when my first OS told me I had to stop walking for fitness, after a year of priding myself on my toughness for pushing through escalating pain. It's weird, too, how quickly you can fall off the cliff. There's a gradual, intermittent deterioration and then at some point - bam! And, unlike other injuries, no rehab or healing in the customary way. I'd complain to the management, but I can't get their address...

    Sorry that you can't tolerate NSAIDs. What about those nutritional supplements & foods that can help protect your stomach lining? Zinc, cranberry juice, licorice extract, etc?

    Seems like the general opinion here is that if you can't function and have significant pain, there's no point to delaying surgery. Naturally, everyone's path is their own and decisions are their own.

    I've found that using a cane has helped reduce both my pain and my vanity. My current OS (he who will do my surgery) explained that each time we take a step, our body weight is multiplied many times on the hip joint. Using a cane in the opposite hand helps "unweight" the joint, relieving a few of those body weights and reducing load. For me, cane = less pain & almost no limp. No cane = significant limping and pain in less than 10 minutes.

    We recently got a super cushy latex mattress with an adjustable frame, so I could raise my legs. Helped a bunch! I also routinely use a knee pillow. The bed is now where you'll find the family hanging out, cats and humans alike.

    With regard to pain disrupting sleep, some people find the routine use of audio guided imagery helpful, as it trains up the parasympathetic wing of your nervous system, down-regulating the nervous system's overactivity that comes with the stress of pain. I use this kind of stuff at my work; if you're interested let me know and I would be happy to make some recommendations.

    Nobody would ever choose to be a member of this club, but happily, there's a lot of really nice people here!
     
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  14. Susan209

    Susan209
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    Awww, @ScenicRte thank you for your nice reply. Makes me feel better. :flwrysmile:
    Yes, my hip hasn't been great for a few years, but it was ok; I was diagnosed with OA in 2013 and I could live with it and carry on doing most things, including going to the gym, albeit with some modifications. Last appointment with OS was 2015 and he said back then, I can have the replacement whenever I'm ready. I wasn't and just kept going without too much impact on my life. But since about Christmas, it has been declining, and a particularly horrible three days about two weeks ago made me book in with my OS. Hanging on till Thursday... It's been a bit rough, to say the least.

    If you get hold of Management, please do let me know; I'd like a word, too. :nah: Seems unfair to eat well, exercise, not smoke etc etc and to get this in return. Oh, well. All things happen for a reason, I guess.

    I have tried all supplements available, unfortunately to not much avail. *sigh*
    Have a good bed, using pillows, heat, arthritis cream, nothing seems to help. :thud: Guess it really is just time now...

    I'd definitely be interested in your audio guided imagery; never heard of this, and it surely can't be wrong to give it a try.

    My partner jokingly offered me a cane, but I haven't quite managed to convince myself to give it a go. Probably should just get over myself and try.

    Thank you for caring and sharing, and all the best for your THR.
    Sue
     
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  15. Susan209

    Susan209
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    Quick update after my appointment with OS this morning:
    He looked at my new X-rays (boy, did that hurt this time :boohoo:) and said that "not much" has changed from the last images, taken two years ago. He did also say that X-rays don't tell the whole story... Seems to go in line with what I have been reading here; my hips don't look too bad apparently, but pain levels and ROM have changed so much so quickly... Checking my ROM etc. and chatting, he did suggest I get the THR better sooner than later.

    He unfortunately only takes private patients, so I will be referred to a colleague who also treats patients under the public system; not sure how long this process will take... I'd have to up my private health cover and wait a year for surgery to be treated by him; I don't think I can hang on that long. Do any of the other Aussies here have experience with the public system, or did you all go private? What were your out of pocket expenses with private cover (if you are willing to share this)? :what:

    And as I'm allergic to Paracetamol & Ibuprofen, he has put me on Tramadol 50mg twice daily. Will wait till the weekend before I try that, though. Just in case I don't tolerate it...
    Thanks to all so far for the support.
    Sue
     
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  16. Jaycey

    Jaycey SUPER MODERATOR Moderator

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    @Susan209 So sorry you are having to wait for your THR. I am sure our Aussie members will chime in with their wait time experiences.
     
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  17. Susan209

    Susan209
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    So, I had the appointment with the OS's colleague, who also treats patients under the public system. This was on Tuesday. A quick look at my X-rays, my Bonesmart questionnaire (thank you for that, Admins - soooo helpful), and a check of my ROM (rubbish, and getting worse daily, it seems), and OS started filling out admission paperwork for the hospital whilst also explaining different implants etc. He will be using CoC due to my age, and anterior approach. No date yet; best I could get out of him was "less than 12 months, else the hospital will lose funding". :gaah:That is still an awfully long way out...

    Anyway, completed the forms and sent them off to the hospital yesterday; will give them a week or so before I start bugging them about a date. Waiting is sooo hard... :groan:Especially when it's painful.

    He did note I have large bone spurs on both femurs, and signs of early OA in my L hip, too. Yay me. :censored: It is not troubling me yet, though. He also noted that my OA in my R hip is a bit unusual in that it is in the center of the femur and acetabulum, if that makes sense (silly me didn't take a pic of my X-rays, and also can't remember the name he dropped for this type of OA).

    Wishing you all a great first day of winter or summer, depending on where you are. Sue
     
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  18. Jaycey

    Jaycey SUPER MODERATOR Moderator

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    Well at least you are now on the list. Fingers crossed you don't have to wait too long!
     
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  19. ScenicRte

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    Yikes - somehow I missed your reply all the back at the beginning of May, @Susan209! I'm so sorry - didn't mean to blow you off.

    Sorry too, to hear you are still waiting for your date. Glad that you're going to be able to have an anterior procedure - had mine 3 weeks ago on May 22nd and everything was great and continues to go well. And, like everyone says, the recovery process is slow, providing us with yet another chance to practice patience...

    Regarding those guided imagery practices for pain, stress, prep for surgery, etc. - the ones I use and am most familiar with are from HealthJourneys.com. Belleruth Naparastek, LCSW, who founded HJ, started out as a medical social worker, working with cancer patients. She started doing relaxation training and imagery years ago to help patients improve their quality of life, and it caught on big. She's now one of the foremost experts in the US on the use of imagery and mind-body interventions for all kinds of conditions and situations. I like HJ's stuff because they stay close to the research, have participated in research studies themselves and are very grounded - a good quality when you're working in an area with a reputation for new age woo-woo-ness. HealthJourneys.com is also recommended someplace here on BoneSmart.

    Part of what I do is counseling students at a local college, and frequently use these practices with my student/patients. Since students usually don't have much money, I found a website where you can access MP3 files some of the most frequently used imagery exercises for free! Kaiser Permanente makes them available to their patients as podcasts at kp.org/listen. KP members can stream, but anyone can access the recordings to download, at least at this point. There's a set of practices to prep for surgery and healing afterwards, for easing pain, stress, anxiety/panic (awesome), anger, sleep - really good stuff. It's not everybody's cup of tea but well worth trying out. I went into surgery very calm and relaxed, which is partly due to using imagery. The other go-to in the mind-body toolbox for coping with pain and physical challenges is mindfulness training, particularly the body scan. UC San Diego and UCLA both have wonderful websites with free access to audio recordings - marc.ucla.edu is a good place to start.

    Hope this is useful! Take care!
     
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  20. Susan209

    Susan209
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    Hello all, just a quick update... And a little rant.
    Called hospital yesterday after not having heard from them in over three weeks. I sent my paperwork registered mail, so I know they got it on June 9. According to state policy where I am in Australia, I have to get my paperwork to the hospital within 3 days of the OS deciding on surgery, and then the hospital has 3 days to enter me in the system and put me on the wait list. And advise me that they have done so...
    Got a very snappy "We have your paperwork, but you don't have a date yet" in response to my enquiry. *sigh* Very frustrating...
    Funnily enough, the hip is currently not too bad, but my ankle is playing up. Really badly. Go figure. :umm:
    Wishing all a nice day
    Sue
     

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