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JackieS

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Jun 4, 2008
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New Jersey, United States
Hi -

I've been lurking this forum since about December and thought it was time to get my feet wet. I'm 52 and my LTKR is three weeks old today (5/14/08).

Since I live alone and this was a planned thing, I really set up my apartment -- my kitchen looked like a grocery store! I stocked up on canned goods, juices which didn't need refrigeration, Ensure if my appetite was lacking, frozen meals and more. I bought a raised toilet seat, set up a bed in the living room where my television and stereo are, made arrangements for my cat to be boarded ... I thought I had all bases covered.

I chose an OS who, while he doesn't exclusively do knee replacements, has a good reputation in the field. He was also the OS of a friend and highly recommended. In my first visit, he took x-rays which showed bone on bone, spurs and all. I had an arthroscopy on the same knee three years ago in which almost all of my cartilage was removed and the knee had just gone downhill since that time. That OS had told me that he was buying me a year until TKR. I squeezed three out of it with a lot of pain.

During that first visit with the new OS in the winter, we had a long talk. Wow, not only was he recommended, but I liked him! He was informative, knowledgeable, caring, and pleasant. Cool! He told me when I had a date in mind, just give him six weeks notice to get it all set up and I decided mid-May, and kept the ball rolling. Even though he told me he wanted me to go to a rehab facility after the operation because he was worried about me being alone, I still liked him.

The operation went off without a hitch. I was a 7:30 AM operation. I recall being more angry that the hospital didn't bring me my bag to my room and I was without eyeglasses for five hours before I could see than issues with pain. They had me get up with a walker and sit in a chair that evening. After being the the chair about a half-hour, I asked to go back to my bed due to pain. The hospital therapist actually snapped at me that I hadn't sat all that long.

In the morning I was told I would have PT at 9:30. Instead, at 9:00 they wheeled me to a different place for a doppler test (blood clots). The woman running it didn't tell me any results but looked disturbed. I got wheeled back to my room around 11 passing the PT. I said something to him about missing the PT appointment and he just mumbled, "Yeah, we got the results."

Then my doctor and the hospital's doctor who deals with such things came along. I had a blood clot in the calf of my left leg (the TKR one). No PT for me in the hospital, Coumadin, no getting out of bed even. Sigh. I certainly hadn't planned for that. I ended up running a slight fever and getting sick on top of it all.

By the 4th day in the hospital (when I was originally planning to go to rehab after three) I practically begged my doctor to let me get out of bed so I could use a real bathroom. He said okay, and call for assistance. Well, I called for assistance once and she annoyed me (have I mentioned I'm fiercely independent?). Her assistance was hovering almost underfoot! The hardest thing was dealing with the huge mechanized IV rack. All I really wanted her to do was to unplug that, follow me with it, plug it back in when I was back. After that, I didn't call anyone again when I had to go.

On the 6th day, they took the IV off. Yay! On the 7th day, although my leg still seemed to weigh about 500 pounds, I came out of the bathroom to find my OS in my room. He watched me get back into the bed. "Do you want to go to rehab or go home?" "HOME! Home, please, home!" He thought I had enough control to manage and they still couldn't do any rigorous PT due to the blood clot, so home it was.

Now I've been home two weeks dealing with visiting nurses drawing blood for the Coumadin , visiting PT. My out-patient PT started this week. I've pretty much stopped using my pain pills with the exception of PT. My extension is almost perfect while my bend is 92. My staples were out last weekand I was x-rayed. Neato - a perfectly straight leg with a bionic knee ... or titanium, anyway.

I'm walking without aids around the apartment, one crutch out in the real world. I'm not ready to leap tall buildings in a single bound. I have my ups and downs, but the knee itself didn't go anywhere near as horrible as I had it in my imagination pre-surgery. When I get down or it hurts, I remind myself that I didn't think I'd be doing this well this soon -- my PT (visiting and out-patient) and OS are all thrilled with my progress. Sometimes it's hard to be as thrilled from this viewpoint, but it's going smoother than I had thought it would.

The Coumadin is a major pain, though. I gave away all of my stocked up cranberry juices. Sigh.

This forum, even as a lurker, has been informative and supportive during my pre-op and since I've been home. Thank you!
 
Jackie, welcome to non-lurking status!!! At three weeks out, you are doing fabulous, girl!!! Especially considering what you've been through with the clot! Hopefully you won't have to be on the blood thinner much longer and that part of your life will improve. Keep up the great progress and write when you can. We LOVE hearing stories like yours of great success! .....Jamie
 
Hi Jackie,
I am from the hip side, surgery in 2 days. I had arthroscopic hip surgery on Feb 1st and I can relate to the glasses and book missing . Mine finally arrived late at night after a nice nurse's assistant went and found it!!!

You seem to be doing awesome. I like to read all these stories, especially so when things don't go exactly as planned in a few weeks it gets better!!!
Judy
 
You are inspiring! Keep up the positive attitude and awesome progress. Sorry the hospital experience wasn't the most positive - but now you're home. I won't join you on the other side until July 14th, but look forward to hearing /reading more about your recovery! It is amazing that you are doing this so independently! Kudos to you!
Marianne
 
Hey, Jackie, no lurking allowed! You are part of this family now. I do a bit of lurking and a little bit of chatting but hope to be doing more contributing once I have my BTKR June 16. I admire your fierce independence and hope I will have the same amount of inner strength. Hospitals suck even under the best of circumstances, so sorry your visit was longer than you might have wanted. Did they offer to put you on Arixtra (injections) for clotting? I am told that is what I'll be doing. Not looking forward to poking myself, but I don't think it has the dietary restrictions as Coumadin. I'll poke myself with just about anything at this rate just to get these legs right again! Good luck with the rest of your recovery!
Sharon
 
Thank you all for the welcome!

Jamie - I'm scheduled to be on Coumadin and have blood drawn to control the dosage until Aug. 15. It's scary stuff -- klutz I am, I already broke a glass and was worried I'd cut myself (and bleed to death). The TKR itself makes you exhibit some of the trouble symptoms of the medication -- tired, short of breath, etc. Yes, it's good they found the blood clot, but...!

Judy - Best of luck with your surgery! It's great someone understood my eyeglasses fuss!

Marianne - Thank you. I know the panic mode I went into as the surgery date closed in. But even with an unexpected and dangerous complication, I'm already happy I did it. I still have pain and I know it's going to be a long road, but I'm seeing improvement. Before the TKR I only felt pain and despair. Now I have hope again and I'm doing my best to get the best result in the end. You will definitely be in my thoughts and prayers on your surgery date.

Sharon - My right knee is bad but not bad enough for a TKR right now -- perhaps 3 to 5 years. So I was spared bilateral. I had no history of blood clots (never had major surgery in my life, just 2 same day arthroscopies, one on each knee). I was only taking ibuprofen pre-op, stopped that 10 days before the surgery. Once they discovered the clot, I had Heparin in an IV and the Coumadin. Now I just have the daily Coumadin dosages. I've never heard of Arixtra. I don't know if poking myself would be any worse than the weekly blood draw they've been doing. It actually sounds like a better route. June 16? I've marked my calendar -- If you feel something strange in the recovery room, it's my thoughts and prayers settling in beside you!
 
Jackie, welcome to the knee forum! We welcome you and I am so excited about your progress. Seems like the folks that have had recent surgeries are recovering much more quickly than some of us did back in December/January. Good for you! Keep it up and I wish you all the best as you recover!
 
Jackie, hi and welcome. Glad we were here for you even when you were a lurker. Say that word outloud. Sounds pretty funny. Anyway, glad to hear you are on the up swing from evrything. keep posting. Jen
 
Did they offer to put you on Arixtra (injections) for clotting? I am told that is what I'll be doing. Not looking forward to poking myself, but I don't think it has the dietary restrictions as Coumadin.
Sharon

Sharon, I have been on Coumadin for a couple of years to prevent problems resulting from atrial fibrulation (irregular heartbeats). It is not bad at all and I have had to make no changes to my diet. The key, I found, is just to be fairly consistent in things that you eat and drink that have an effect - green vegetables thicken the blood, things like alcohol or aspirin thin it). I don't do anything special and my blood levels are almost always within range. My cardiologist has a machine that uses a finger prick instead of having to have blood drawn....MUCH better!!! And the result is immediate. I checked with my home health company to be sure they used that type of machine before I hired them....we DO have some choice in all that! Anyway, I just wanted you to know that my experience with the drug has been good. People always say such bad things about it. Of course, it is better not to be on a blood thinner at all, but if you have to for a while, it can work.
 
Hey---I had three small clots---two in one leg, one in the other, after my Bilateral TKR in November. They shut my PT down for a day or two, put me on Lovinox, and got me up and going. Nine days total in the hospital---came home the day OSU beat Michigan. After the Lovinox, it was aspirin therapy.

Best of luck to you---hang in there, things will get better, but the PT will not be easy. It will be challenging and frustrating, but IT WILL BE WORTH IT. I now have my life back and am enjoying doing things that I thought would never be available to me again.

ATTACK THE PT WHEN YOU GET TO IT; BE AGGRESSIVE WITH THE PT!

Tim C.
 
Hey, Jackie! Glad you finally became an official poster. I think we all lurk a while, I know I did. It is my fear of being online talking seriously to someone and finding out they are 12 years old. LOL. I am one day older than you. Had BTKR on the 13th, thought I was going to have to go to inpatient PT but lucked out. Doint PT and hope they are right that I won't have to go long. Sore today as they had me on a machine that did crunches yesterday that was easy enough to do but still made me sore today. You sound like you really had your bases covered and were ready for the surgery. I can't imagine doing it without my hubby and two sons. I think in lots of ways they had a harder time than I did. Anyway, we are all recovering together. I hope we hear lots more from you. Rowdy
 
A big welcome to the forum, Jackie. I am so pleased we helped in some small way. Much kudos to you for being so organised and ready for anything. I pray it continues well for you.

But have you got your kitty back yet!
 
Welcome, Jackie! I'm a whole two weeks "older" than you are, with a LTKR on 4/30...but I didn't even find this group until I was home and past the worst of it all.

It sounds like you're doing fabulous--congratulations and keep it up!

I envy you your OS with a personality! Mine is a great doctor, but leaves all the talking and touchy-feely stuff to his assistant, who, fortunately, is great. I think my OS had his personality surgically removed at birth....

Weezy
 
A big welcome to the forum, Jackie. I am so pleased we helped in some small way. Much kudos to you for being so organised and ready for anything. I pray it continues well for you.

But have you got your kitty back yet!

Thank you for the welcome. And, oh yes ... my friend who drove me home from the hospital picked me up, stopped for my prescriptions (getting me fresh bread, milk, and eggs, too), and it was on to pick up the cat on the way home from the hospital. It took about a week for my cat to forgive me. She's 16, but in good health. She's only been boarded a few times and the last one was 1998. She's been very good. I trained her years ago to move from underfoot when I say "Excuse me." That training has become a blessing in my recovery so far!
 
Welcome, Jackie! I'm a whole two weeks "older" than you are, with a LTKR on 4/30...but I didn't even find this group until I was home and past the worst of it all.

It sounds like you're doing fabulous--congratulations and keep it up!

I envy you your OS with a personality! Mine is a great doctor, but leaves all the talking and touchy-feely stuff to his assistant, who, fortunately, is great. I think my OS had his personality surgically removed at birth....

Weezy

Thank you Weezy. I think I knew for sure I had a good people person doctor when he asked me if I was psychologically prepared for the TKR during my last pre-op visit. I already knew he has a reputation for being a perfectionist in his work. But by him asking me that, it struck me that he's concerned with the whole person, not just the knee -- he understands that there's a lot going on beside the knee when you have a TKR.

My next office visit is in 2 weeks. I'm planning on walking in without aids, my best gait possible, and asking him if this is where the auditions are for the new TV show "So You Think You Can Walk."
 
Rowdy -- Sounds like you're doing great! I've lurked your posts for some time now. ;-)

Although I got off to a slow start due to the blood clot, I think the fact that I have to do for myself has been a huge incentive. I can't get that cat to wash the dishes or even answer the phone!

It was rough for a few days, but I noticed improvement each day. I was only home a week before I tested walking to the corner store for milk. That's a bit over a block away. I used crutches, of course. Now I walk over there almost daily down to one crutch. But I can't imagine doing it on bilats!

My next goal is to mop and wax the kitchen floor. I did it the day before my TKR, but it's looking dirty.
 
My next office visit is in 2 weeks. I'm planning on walking in without aids, my best gait possible, and asking him if this is where the auditions are for the new TV show "So You Think You Can Walk."

Great idea, Jackie! I think doctors enjoy knowing their patients are "human" with a sense of humor just as much as we enjoy seeing that side of our physicians. You sound like a wonderfully optimistic person! And I can't believe how soon you made it to the store --- you're determined too! Keep it goin'!!!
 
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