- Joined
- Jan 29, 2012
- Messages
- 556
- Age
- 39
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- Female
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Canada

Glad to hear you guys may have found some answers. I was going to suggest that this almost sounded like it could be a systemic issue.
I had a lot of random symptoms my entire life, not ever realizing that they were all related to one thing MCAS which is an allergic reaction to my own body because I have hEDS. Had no idea I had EDS either so none of this ever got picked up. I break out through various random stages of swelling and hives for what seems no reason at all, but it’s usually a MCAS reaction to nothing.
Your swelling could be a sign or symptom of an overall condition or something you didn’t realize you have(Not saying it could be something serious). Your body can get triggers depending on what the cause it. I wouldn’t rule out a general condition which giving your those episodes. Glad you are doing so much better and hopefully this is it for you. Hives are no fun.
I had a lot of random symptoms my entire life, not ever realizing that they were all related to one thing MCAS which is an allergic reaction to my own body because I have hEDS. Had no idea I had EDS either so none of this ever got picked up. I break out through various random stages of swelling and hives for what seems no reason at all, but it’s usually a MCAS reaction to nothing.
Your swelling could be a sign or symptom of an overall condition or something you didn’t realize you have(Not saying it could be something serious). Your body can get triggers depending on what the cause it. I wouldn’t rule out a general condition which giving your those episodes. Glad you are doing so much better and hopefully this is it for you. Hives are no fun.