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TKR Knee Fusion

Pwally123

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Hi

I have had a knee Arthrodesis for 10 years now and it’s really affecting my body.. Im getting tendonitis a lot in my foot and shin and have noticed a large lump growing on top of the fused legs foot.

I am struggling a lot and feel it is aging my body a lot quicker, I am in discussions about having it amputated as it’s stay like this or lose the leg, I am tempted to go ahead with amputation as if there is a slight chance of a better quality of life then I would like it, a prosthetic leg with a bend would be better than this surely? Or am I dreaming??

frustrated and hating this fused leg..
 

Pumpkln

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@Pwally123 ,
Welcome to BoneSmart, glad you joined us.
We had a member who had a fusion to TKR surgery. So far as we know his knee is doing OK.

There is a link to an study about Fusion to TKR

Have you sought an opinion from a specialist in complex joint reconstruction/fusions?
 

Jamie

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There are challenges to a fusion and and a completely different set of challenges to an amputation. Pumpkln is correct that you need to find a specialist (possibly in one of your Centers of Excellence) who can give you good solid information about your options.

Have you asked whether your fused leg could now be converted with a knee replacement? They do things quite differently now than they did 10 years ago. You might have to travel quite a ways to a Center of Excellence or a larger city for whatever procedure you'd like to consider, but it may be worth the inconvenience to do that.
 

Jamie

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I'm going to tag @Jaycey.....she is in the UK and may be able to help you locate some clinics that could help you.
 
OP
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P

Pwally123

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Many thanks for replies, unfortunately mine can not be revered to TKR as my ligaments are no longer there fully, the reason my leg was fused as they could not do anything further, 3 surgeons have said it’s Either continue as I am or above knee amputation.

I have no other options.
 

Pumpkln

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@Pwally123
Before you decide, suggest you ask to talk to individuals with above the knee amputations, and speak with orthotists who specialized in prosthesis for amputees. Once you connect with an orthotist they will be able to refer you to individuals with AKA's.
Your orthopedic surgeon should be able to refer you to an orthotist.

A friends husband was in a motorcycle accident that amputated his foot, He had a BKA, his knee was so painful he opted for an AKA, he never looked back and has done well for the last 30+ years.
 

Jaycey

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@Pwally123 I agree with Pumpkln, please investigate this fully before proceeding. Have you seen those 3 surgeons recently? Is one of them a surgeon of choice who could refer you to an orthotist?
 

Celle

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My son had to have an above-knee amputation, due to an accident.
He's made a "good recovery" and, with his prosthetic, he walks without even needing a stick.

However, it hasn't been a walk in the park, and it still isn't.
  • He has to try to maintain a constant weight, or else the prosthesis doesn't fit properly.
  • He has had to have his car modified, so he can drive.
  • Although he can walk well for short distances, he can't walk far. If he tries, his prosthetic leg wears blisters on his stump. Then he has to leave the leg off and use crutches until the blisters have healed.
  • In summer, his leg sweats badly inside the artificial leg and he cannot wear it all day.
  • It's 12 years now since my son lost his leg and the frequent need to use crutches is starting to damage his shoulders. When they fail, he will have to use a wheelchair when he can't wear his prosthesis.

I'm really sorry that your knee fusion is causing you problems, but please only think of amputation as a solution if all else has failed.
 

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