Just came on to check out a few others on here and let you know why I disappeared.
I'm grateful to those who replied on this thread inluding @Celle @Jamie @kneeper @Jockette @sistersinhim @PegGar16 @maryo52 @Sisterpat @Jaycey @Pumpkin
and all the others who helped me on this journey but I just couldn't bring myself to unload on you guys again until I accepted the situation myself.
My surgeon ordered new x-rays which showed a very loose femoral prosthesis (much more than it was two months ago) and now he believes that with limited space to extend it further, I would have to have a Total Femoral Replacement instead. Has anyone heard of this? I was told it means taking out the existing prosthesis and the femur including my hip so effectively it would be a knee, femur and hip replacement all in one. At the moment he thinks the tibial implant is ok but said he will only be confident it is fine 'when or if' he operated. He said this TFR would be a salvage operation to save my leg and he is not confident I would survive the recovery of such a huge operation - maybe because I had anaesthetic problems a few times before?? He said they still don't know exactly why these complications keep happening but with having osteoporosis and RA, there is a big chance they could make it worse because the muscles are atrophied and and the tendons are no good - he said I may end up stuck in bed if this one loosens like it has several times now. He also asked a few other revision specialist colleagues their opinions and this was what they came up with.
At present he wants me to transition to a power wheelchair permanently but if I still can't stand the pain then we can try to get me physically fit into perfect shape with my asthma, diabetes and RA but added even then he still would be hesitant. He also mentioned that I could just have it amputated now while the hip is still in place but said that would be a big op too :( ... nothing sounds very good at this point.
Oh and @kneeper
, I tried to get the appointment with my rheumatologist but she has gone in with other Dr's in the hospital rooms so they are charging $500 to see her and I have to wait for 6 mths for an appointment. Some help that is. Luckily on Wednesday my GP is back from holidays so I get to see him to ask what he thinks about it all.
I guess I have to just keep plodding on... lol ... however they might want to give me a few lessons, I think my wheelchair skills are much to be desired particularly when I have to have a leg extension on it for my stiff knee. It's a matter of "lookout public, here I come" .... haha.