Knee Infection* Infection at 7 Months Post Op - Back to Crutches

@PegGar16
My surgeon told me not to worry about work. He said he’d take care of the paperwork and I was supposed to lay low and take it easy. But I was too stunned to ask how long that would be. I’m just trying to get a realistic time line so I can prepare my school for the news.

Is it a safe assumption that I will be at home during the whole 6 weeks iv antibiotic process? I really can’t see navigating my 3 floor school with a cement spacer, pain meds, two1.5 hour iv treatments a day, crutches and a leg brace. Then if the infection clears after that, it’s 8 weeks-ish with the replacement (that part I know). So if everything goes well 14 to 16 weeks?
 
@Mrs. Ciz I am so sorry, that's not something anyone wants to hear. I am glad you went and got it checked out though! I will say a lot of prayers for you and please do keep us updated as you're able. Sending virtual hugs!
 
Mods, please change my title to:

“Infection at 7 Months Post Op - Back to Crutches”
 
That sounds like a good time frame. Are you doing any on-line teaching or is it all in the classroom?
 
That sounds like a good time frame. Are you doing any on-line teaching or is it all in the classroom?
It’s all in the classroom face to face.

My school building is 100 years old with 3 floors and no elevators. It was hard enough to navigate at 12 weeks post op from BTKR. They let me use the 1st floor cafeteria for the first few weeks, but even then, there were lots of stairs involved. Plus it’s my right leg, so I thinking driving will be problematic. I’m trying to get a realistic idea about what/how much I’ll be able to do. I don’t want to over promise and under deliver.
 
I am so sorry to hear this. That has to be incredibly scary. Can I ask a did you feel feverish or any symptoms at all? It’s so scary to think infection can creep up out of nowhere. You are in my Prayers
 
I’m trying to get a realistic idea about what/how much I’ll be able to do.
Unfortunately there is no way to predict how you will react to the treatment and how fast the antibiotics will eliminate the infection.

Also sounds like stairs and driving may be a problem. Are you in the position to take the time off work?
 
@Jaycey
I had accrued a ton of sick leave over the years, but I used 6 weeks at the beginning of the school year with my first BTKR. I have 5 paid weeks left. Then I’ll move to the unpaid 12 weeks FMLA leave. So I have 17 weeks with a combination of paid and unpaid. We can make it on my husband’s salary if we need to. Thank goodness we just paid our very last university tuition bill! The summer months won’t count against my sick/FMLA leave. There are 13.5 weeks left in the school year. I just hope I’m all better by the beginning of next school year, or my job will be at risk.

@Cococay
Yes, this came out of nowhere. I had my BTKR on July 6th and was released from my surgeon on Nov 10th. At that point everything looked good. The right leg wasn’t getting its range of motion back as quickly as the left (especially extension), but it has lagged behind since day one and was plagued by tight hamstring issues. I kept reading no two knees heal the same, and it takes a full year to recover, so neither my surgeon nor I thought twice about it. Then I overdid it Thanksgiving weekend (didn’t everyone!). I got some swelling. And at some point that weekend I hit the coffee table leg with my left shoe and stumbled. That really made my right knee sore. I got a sore bump below my knee on the front medial side. It was super tender to touch and a red roundish mark appeared. I thought it was just a soft tissue injury because surely a little stumble wouldn’t ruin the implant. By mid December, the bump had gone down, tenderness had abated, and the red mark had faded and peeled. Good - I thought that confirmed that it was all soft tissue related. But the tenderness, lower leg swelling and red mark came back in mid January. I’d had a really busy day running all over my 3 floor school, so I figured the swelling was because of that. I had my school nurse look at it. She said then that I should probably get it checked. But again, a couple of days later, swelling went down some, red mark faded and peeled, tenderness subsided. However, I did then make an appointment for March 2nd with my GP. I needed a physical anyway and would talk to her about it. It seemed so minor, I didn’t want to look like Chicken Little - “The sky is falling! The sky is falling.” But then it happened a 3rd time last week. I had a hard time walking for the first half of the day due to the discomfort, and my lower leg was visibly swollen. Red mark was there but very light. The school nurse saw me hobbling, saw the swelling and insisted I go to my surgeon to get checked. She thought it was a blood clot/DVT. So I called, and they squeezed me in for the next day. My appointment was with my surgeon’s PA. He hemmed and hawed over my leg because it doesn’t look that bad (just a little swollen). But he did agree that it was odd. He also noticed that the extension was worse than it was on Nov 10th. It was hard for me to tell. I just thought my left was progressing so much faster and the right had stalled that the gap in ROM between the two was getting bigger/more noticeable. But ROM in the right had actually decreased. So he consulted with my surgeon. They decided to start with xrays and bloodwork. Unfortunately they knew immediately when they saw the xrays. The infection has already entered both my femur and tibia. They could see the changes to the bones on the X-ray. They grilled me on dental work, open wounds, etc. trying to figure out what sparked the infection. (Only 2 little things I could think of after the appointment - an ingrown hair in my pubic area and a tiny scab on the inside edge of my nose that keeps getting irritated - both totally normal things that I didn’t think anything of at the time, but one of them may have been the cause.) At this point in my appointment, the surgeon took over, and things went into hyperdrive. Explant surgery was scheduled, blood work and CT scan orders/scheduled. I held it together until I got in my car, and then I bawled.
 
I just hope I’m all better by the beginning of next school year,
Let's take it one step at a time. Sounds like they are moving quickly - that's great!

What's the actual date of your phase one op? I'll put it in your signature for you.
 
Unfortunately they knew immediately when they saw the xrays. The infection has already entered both my femur and tibia. They could see the changes to the bones on the X-ray.
@Mrs. Ciz - I'm sorry to read this has happened to you.

Are you taking antibiotics now?
It sounds to be as if you should already be receiving IV antibiotics, to start treating the infection in your bones.
 
@Celle
I am not on antibiotics yet. They will send the sample they collect during my explant on Thursday to an infectious disease specialist. He’ll do a culture to determine the best cocktail of antibiotics for my specific infection. My surgeon said if they give antibiotics now, they won’t be targeted to my infection and could change the infection sample making the specialist’s antibiotic cocktail less effective.
 
That makes sense.

So the date for your first stage revisions (the ex-plant) is Thursday, February 25, 2021 - is that right?
 
That is just crazy to me,- I guess in my mind- I think infection and I picture and obvious open cut on the leg- and fever, chills, etc. I am really glad that the school nurse pushed you a little to get in. I am glad they are being aggressive in treating it. I cannot imagine how your feeling, but- you got this. Your in good hands, and all you can do now is trust in your surgeon and do whatever it is you feel you need to deal with this emotionally. Let yourself feel disappointed- knowing that it is all temporary. I will be watching your thread, and you have everyone on here to help support you and get you through this.
 
@Cococay
Thank you! I’m trying so hard to just accept it and plow through. It is out of my control at this point.

One thing I am super worried about though is the infection moving over to my good left knee implant. He didn’t X-ray the left leg because I’m not having any swelling or weird stuff in the left leg. But I’m terrified that the infection is lurking there too. It’s not swollen or red and has good range of motion. But the kneecap is tight/stiff. I don’t know what feelings are normal anymore.
 
I know how frustrating and worrisome it is. For a couple of years after my final knee surgery I was constantly checked for infection if I had joint pains, not feeling well or off labs. I know they were a bit extreme but I appreciate it. I broke one of my fingers/knuckles last August and it ended up needing surgery. While in the preop signing the consents with the hand surgeon we came across the section on infection. He told me not to worry and I looked at him and stated I was part of the lucky 1%. He changed the antibiotic order..LOL. I really don't worry about it a lot any more but tend to be more attentive on what's going on with my body. Once you get your picc line the antibiotics will work its way through your whole system. They will take good care of you. Did you end up getting an infectious disease doctor?
 
@PegGar16
Yes, I will have an infectious disease doctor. I hear you about being in that “lucky” 1%. In January I got COVID and now this. This past weekend, my husband and I saw a billboard for the 22 million dollar Powerball lottery. I told him we needed to buy some tickets because my luck is so incredibly bad right now that it HAS to change soon! I’m due for some good luck!

I am paranoid about every little feeling in my good left leg now. I am so worried about the infection going there or already being there. The only strange feeling I get in the left knee is tightness in the front of the knee. I’ve never had that tightness in the infected right knee. Is it normal??? I don’t know what feelings are normal anymore.

Explant surgery is tomorrow. I’ll check in after that.
 
I am paranoid about every little feeling in my good left leg now. I am so worried
This is causing tension in your body, making everything feel worse. In my first year my knee always hurt more when I was upset about something.

And, at 7 months you still have lots of healing to do, even if you hadn’t gotten the infection.

I never had an infection, but I was “lucky enough” to be in the small percentage of people who didn‘t get a good outcome.

Sending best wishes, hugs and prayers.
 

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