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I need help and advice on my back

Discussion in 'Other joint replacements discussion forum' started by pegleg, Nov 10, 2015.

  1. pegleg

    pegleg member
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    Hi all,

    I went to see the neurosurgeon today and he said he did not understand why I was in so much pain. He said that everyone has OA and degenerative disk diseases and they cope with the pain. He also said that he did not think that the insurance company would retire me with it. Only been OA and DDD. At my wits end don't know what to do.
     
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  2. Jamie

    Jamie ADMINISTRATOR Administrator

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    Peg, so sorry to hear of your problems. That's some bedside manner your neurosurgeon has. No wonder you are frustrated and wondering what to do now. Sure he's right that a lot of people have some level of osteoarthritis by the time they hit middle age or later. This issue to me is not whether you have problems or not but the degree in which they are impacting your life. Did he not offer any other suggestions for you besides "deal with it"? If not, you might want to search for another opinion.

    My husband has severe spinal stenosis and we've been to several neurosurgeons over the years. Not all of them are inclined to work on solutions other than pain management. Keep looking if you can. The spine is tricky, but sometimes there are things that can be done.

    I'm afraid I cannot comment on your likelihood for early retirement as I'm not up to speed on the Canadian health care system. In the US, if you are unable to work, there are government programs for small benefits that can be applied for, but I'm not sure if similar programs exist in Canada.
     
  3. Pumpkln

    Pumpkln FORUM ADVISOR Forum Advisor

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    pegleg,
    Sorry you were treated so poorly. There is no relationship between the amount of pain, and the amount of OA or DJD. Some have terrible looking backs and no pain, some have very few changes and excruciating pain. I do not think anyone has a good answer for this.
    I agree with Jamie, get a second opinion.
     
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  4. Me2

    Me2 post-grad

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    I was told pretty much the same by two of the neurosurgeons I went to see for lower back pain. I was finally referred to a pain doctor. I asked him about the SI joint after reading someone else's post here about the symptoms. Last May, I had iFuse surgery and, though I still have some lower back pain, its nothing like what I was experiencing with the SI joint instability.

    Back pain is no fun. So hard to understand and deal with. I've been doing Pt all summer relearning walking and now working on core strengthening. I hope its helping. I had my one year follow up regarding hips. The doctor ordered a bone scan which indicated problems at L2-L3-L4 and bursitis. The injection for hip bursitis helped, but shoulders have been hurting so bad I can't tell for sure. I see my back doctor for follow up next week and hope to get some answers on back pain.

    Feeling like I'm really too young for all this at "just" 57 . . . keep looking for answers. . . .
     
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  5. Pumpkln

    Pumpkln FORUM ADVISOR Forum Advisor

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    Pegleg,
    Me2 has an excellent suggestion to have the Dr's check out your SI joint. It can be a major cause of back pain, most Dr's overlook the SI as a cause of pain.
     
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  6. walkingtime

    walkingtime new member

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    Not everyone has OA and DDD and not everyone can cope with it.

    It is a well known fact that in OA and DDD, changes seen on CT or MRI do not necessary correlate with the extent of pain. Seemingly mild DDD can cause severe pain and vice versa. This runs in my family and 3 of them had the same problem: disabling pain and lack of cooperation by orthopedists and neurologists.

    pegleg, if you can not trust your doctor, change it or ask for a second opinion.

    Write down your exact symptoms i the back, arms or leg (pain, tingling, numbness?), what triggers the pain and what relieves it. This can help a doctor to have better idea what's going on.
     
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  7. Jaycey

    Jaycey SUPER MODERATOR Moderator

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    That neurosurgeon needs attitude adjustment. He is talking total rubbish! I have major lower back issues and have had surgery. I am in constant pain. Not everyone "deals" with this. I agree with the idea of getting a second opinion. At least you need help dealing with chronic pain. Why not post on our Chronic Pain thread in the Social Room?
     
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  8. NightQuilter

    NightQuilter Sr Bonesmartie

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    So sorry to hear of your doc's attitude; sorrier still to hear of your chronic pain. I so get it. I've had back issues since a teen and they were variously diagnosed and treated, non-surgically, for years. I've had epidurals, PT, and other injections; my daughter who has the same issue, has her pain controlled by rhizotomy where they basically burn the nerve roots. She now gets about 2 years pain-free before needing another one (she'll eventually need the fusion, but because that will lead to stress on neighboring joints and further fusions, at 28, we are putting the first one off as long as possible). Finally things progressed to where I had a "dynamic spondylolisthesis" (constant movement) at the L4-L5 and needed a fusion. Fortunately, I had a brilliant surgeon 10 months ago and have had a very successful recovery. Flare-ups are rare and I am finally able to exercise reliably (of course, the hips and knees had already been replaced, which allows the movement!).

    The point is, you need another doctor who is not so prone to amassing you with everyone else. Someone who specializes in lower back issues. It is a murky area, thus the need for an innovative specialist. All the suggestions above are spot on. I wish you well!
     
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  9. Josephine

    Josephine FORUM ADMIN, DIRECTOR Administrator

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    @pegleg ever tried a chiropractor?
     
  10. Josephine

    Josephine FORUM ADMIN, DIRECTOR Administrator

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  11. susanne

    susanne post-grad

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    Thanks Josephine I feel like I’m in every category. But my neurol surgeon said stay away from chiropractors for awhile


    Sent from my iPhone using BoneSmart Forum
     

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