Well, I am back again... it's been a long long haul. Some time ago I wrote and asked for preparation suggestions for a TKR at the Cleveland clinic. Well, that surgery was cancelled because the doctor said that if a lidocaine injection did not take the knee pain away he would not proceed with surgery. The lidocaine did not remove the pain and surgery was cancelled. Months later, now having hip and back severe pain, another Cleveland clinic doc said he also would not have it done because it would raise my rate of mortality, infection was possibility that would cause huge repercussions, and said he would not go through with it himself. That leaves me a lot of frustration and depression because the pain is worse everywhere now and I think that is what he docs are afraid of that the knees are not the source of the pain. However, they are both bone on bone. I can't help the fact that I am in so much pain but it is what it is - I don't want to underestimate it before surgery so the docs know the full picture. My latest thought is that I may have a spectrum of eds or hypermobility because my joints move too well. I have read that these type of patients don't do well with TKR because their laxity remains in their ligaments and it takes a long time to heal. That is what has me stuck - I had a mere meniscal repair years ago and since then, I developed terrible pain, knots, limping, and on and on. I have found a surgeon now in Pittsburgh that is willing to do surgery but does not want to hear about much more than specifically the knee joint. Unfortunately my pain is also in the quad, and swelling and pain below the knee joint is severe. Can anyone help or enlighten me? It is terrifying that I may become disabled with surgery or the thoughts that I have to deal with the way things are now..