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THR Heterotopic Ossification

H.Ometoo

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Hi, I had hip replacement about 1 1/2 years ago. I had to have the surgery due to a accident I had 7 years prior. Unfortunately I ended up having Heterotopic Ossification. In October of 2020 it was a year and I went in for a nuclear bone scan. Unfortunately it showed that the bone was still growing. My current orthopedic surgeon does not want to remove the bone because it will leave me with a permanent limp. I have a slight limp, pain and I can’t do certain things. Prior to the surgery I was very active. I would like to get a second opinion but have no idea who to go to. If anyone knows of a specialist in HO, I would really appreciate any recommendation in Southern California!
 

golfer67

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Send member CalciumHip a personal message and he can help you. Here is the doctor that helped his wife with HO. The doctor that did the HO surgery on Anna is Dr. Shervin Oskouei, 59 Executive Park South, Ste 2000, Atlanta, GA 30329 Tel 404-778-6363
 

golfer67

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I know this guy is in Atlanta but it might be worth flying to Atlanta to get fixed right.
 

Celle

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Hello @H.Ometoo - and :welome: I'm sorry you've had to find BoneSmart because of a problem, though.

Since you haven't yet made 5 posts, you won't be able to send a Personal Message, so I will tag @CalciumHip for you, hoping he sees the tag.

Please will you tell us the full date of your hip replacement and which hip it is, so we can make a signature for you? Knowing the exact date could help us to advise you appropriately in the future.
Thank you.:flwrysmile:

We do have a couple of articles in our library about HO:
Heterotopic ossification
Heterotopic ossification prophylaxis – an updated review
 
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H.Ometoo

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The date of my hip replacement was Oct. 17, 2019 and it is my left hip. Never thought I’d be going through this. My surgeon can’t believe it either! Any info is greatly appreciated!
 
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H.Ometoo

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I really don’t want to go all the way to Atlanta to get a second opinion if I don’t absolutely have to. I am hoping to find a specialist closer to where I live. But thank you for the information golfer67!
 

Layla

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Hello there,
Thanks for joining us. I’m sorry you’re dealing with this issue. I’ll tag @Jamie from Administration to see if she has any suggestions for you closer to home.
Stop back often, we’ll be here for support if you need us. :)
@H.Ometoo
 
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H.Ometoo

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Hi Layla, thank you so much for your help. I am going to see my orthopedic surgeon March 1, so I will see what he says then. I’m sure he will be sending me in for another Nuclear Bone Scan! But at this point I’m not sure that I want another surgery. The thought of having part of my muscle removed with the extra bone and ending up with a permanent limp doesn’t make me happy. I would like to start exercising to get out of this depression that I’m in but not sure what would be the best. The last thing the surgeon told me was, “keep moving!” Thank you again for your help!
 

Jaycey

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I would like to start exercising to get out of this depression that I’m in but not sure what would be the best. The last thing the surgeon told me was, “keep moving!”
As a person who suffers daily from chronic spinal pain, I can confirm the "keep moving" advice works. And yes, depression eases when you can get out and about - difficult these days I know.

What can you do in terms of moving around without causing discomfort? I walk, care for several animals and volunteer at a local nature sanctuary. When I don't have access to all this (like now) I do get very stiff.

Find an activity that works for you and try to get it scheduled throughout your week. It doesn't need to be gym level - just moving around regularly.

Keep us updated on how you are doing.
 

Celle

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The thought of having part of my muscle removed with the extra bone and ending up with a permanent limp doesn’t make me happy.
What makes you think that you will have part of your muscle removed? It's more likely to be re-attached to your new hip, so possibly no permanent limp.
I would like to start exercising to get out of this depression that I’m in but not sure what would be the best. The last thing the surgeon told me was, “keep moving!” Thank you again for your help!
Jaycey gave you good advice about exercising, above.

Honestly, I don't think you can continue for long without having a hip replacement. Your hip will continue to deteriorate if you don't have the surgery.
 
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H.Ometoo

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I’m responding to the person that asked, “What makes you think that you will have to have your muscle removed!” Apparently you missed my other post. I had a hip replacement, that’s why I have HO! My surgeon told me that the only way to take care of the HO would be to remove the extra bone that has developed along with the muscle that is attached. Therefore leaving me with a permanent limp. This is my surgeons words not mine! Sorry if I sound irritated. I have an appointment today so I will find out more today! But at this point I feel that I will just have to live with the pain. I walk and do the normal things around the house, this pandemic hasn’t made it easy to do much else. The thing that really gets me is I have a very hard time just trying to get a sock on my left foot because the HO won’t allow me to bend that far. Sleeping at night can be difficult. I can’t sleep on that side and it wakes me up if I’m on the other side to long. I sleep with a pillow between my legs and that allows me to sleep for a few hours before I have to go on my back. I don’t want to take anymore anti inflammatory drugs as the surgeon had even said that I’ve been on them too long. Anyway I will see what he says today!
 

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