THR Feeling isolated and very low

Layla

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The things that helped were calling friends, making gratitude lists, asking people over and asking for bits of help and not letting my mind wander into 'catastrophic thinking'.
I love this! Reading "making gratitude lists" warms my heart. I also loved the way you "reached out" to others by calling them, inviting them over, asking for help. It's easy for some of us to fall into a rut of thinking nobody is calling, or stopping by, no one cares. Not allowing that catastrophic thinking to get a foothold is key also. It is so easy to allow our minds to wander to the" bad place" when we're tired, in pain, feeling lonely and it seems you made the decision there was going to be none of that. You're inspirational, Philippa! I love your update. Thanks for taking the time to share. Let us know how this -> :driver: goes.
Happy Tuesday!
 

Sukuma

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Hi,

I am just a few days ahead of you in recovery. I could really relate to what you are saying. It's a bit different as I have my long suffering partner who is with me at every step of the journey and recently I would have really struggled if I had been on my own. In reality the recovery is going as expected, which at the start I was bouncing up and down given that my leg is now able to do things that it just couldn't do before the op. After a couple of weeks, I then started to feel a little stir crazy, not able to drive, to get out and about, fed-up with being in four walls, plus starting to feel very despondant about my leg length discrepancy. My energy levels dropped (compounded by the lack of sleep) and despite constantly reminding myself there will be low times, there were a couple of moments when I felt despair and panicy that I had aged before my time, life wouldn't get back to normal and how the heck did I end up with one leg longer than the other at the grand age of 57? I must have been driving my partner up the wall as I moaned about lurching about the house on uneven legs feeling sorry for myself.

We went out with my neighbors for a drink, fell about laughing and all those internal negative feelings flew off into the distance. It's so easy when when you are alone and not interacting with other people on a regular basis to fall into negative thinking - despite however good a reason it is. It's incredibly frustrating not being able to drive the car, take my lovely dogs out for the their daily walk and in effect to have your life on hold.

I am doing an online course that has helped. It has also helped to have a daily routine, so that when a specific time comes, I have set myself an activity that I have to do. This really helps me to focus on achievements throughout the day, rather than just lying in bed. I tend to be a very displined person anyway, planning stuff, but I have found that this helps - if I feel low, I still do whatever activity I had planned to do, despite lack of enthuasiasm which helps to bring my mind back to reality.

I also get in touch with some friends on an occassional basis for a chat, but not to much as I want to have something to talk to them about. I also reach out to my partner's grown up kids. I have to tell them when I want a support chat or a visit, as they don't know what to do that will help. It's easy to assume that others will do what you want - but if you don't tell them what it is you need, they don't know , so it can be easily misunderstood that they don't care, which most likely isn't the case, more likely that they don't know what support you need or are just absorbed in something else. I found myself falling into this trap, feeling miserable because someone hadn't texted or called as someone else said 'catastrophic thinking'. It's so easy to do. Normally I don't have this issue, but have found in the past couple of weeks, I easily find my way into that over thinking and over reaction, bursting into tears which just isn't like me AT ALL! Really what I need to do , is just reached out to the person, then within a couple of hours I was having a good giggle with that person as they asked if I wanted a visitor, then leaped in the car to come and see me.

Healing is challenging particularly when it takes time and you can't engage with life as you normally do, so have to find other ways to do things or ask others to come to you. Some of us don't like to ask, not used to asking, don't want to ask as very independant and so on, despite friends and family constantly saying let us know what we can do - we forget those words when nothing happens and those friends haven't actually been told what they can do.! :)
 
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PhilippaC

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I've now completed week 6 and am all set to drive in a couple of days. My mood has been variable but mostly ok. Boredom has been the main enemy! And some frustration.. I have a really exciting project I want to do but can't start yet.

My hip feels tight still and gets a deep throb easily. I think I haven't done enough of the PT exercises but don't want to now rush at doing too many and getting into a painful situation. I've been washing clothes, cooking, putting away my online shopping etc but I don't feel ready to get into shops and walk around them.

I've been walking around my neighbourhood with 2 sticks and that has been for quite short distances because my hip got sore. I'm walking around the house with one stick easily and make a point of just walking from room to room to get the exercise in. Not sure if I should be extending the time for walking outside even though it gets a bit sore? I am wondering if I am being over protective? Any advice please?
 

myglasshalffull

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I say if it starts to hurt take a rest. You don't have to complete all your walking in one session, possibly break it up over a few smaller periods of time during the day.
My primary doctor told me it's better to walk 10 minutes several times per day rather than trying to do 1/2 hour all at once.
I also walked around the house in the beginning months, I'd go around my dining room table 10 times, then switch directions! LOL!
I know for sure I'm still very protective of my hip, I don't want to fall again.
If you can drive going to a small store that has shopping carts is another good way to get some walking in but only do it if you feel up to it. Eman turned me on to shopping carts and it's a great activity and breaks up the boredom for sure.
Happy weekend.
 

Neecey

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Great thread! I too am feeling very isolated after a rare complication after my TKR (not hip) that put me in an immobilizer two weeks after surgery. I’ve been in this “straight-jacket” for going on 4 weeks now and am so worried I’ll never walk normally again. It’s so hard reading about all the successful surgeries and knowing I’m in the 1% of complications category. I had thought by now (6 weeks after TKR) I’d at least be driving by now but I can barely walk in this immobilizer. I haven’t found one similar case to compare notes with yet.
ANYhoo…..I hope to read through every one of these suggestions for some ideas. Thanks for starting this thread.
 
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PhilippaC

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Great thread! I too am feeling very isolated after a rare complication after my TKR (not hip) that put me in an immobilizer two weeks after surgery. I’ve been in this “straight-jacket” for going on 4 weeks now and am so worried I’ll never walk normally again. It’s so hard reading about all the successful surgeries and knowing I’m in the 1% of complications category. I had thought by now (6 weeks after TKR) I’d at least be driving by now but I can barely walk in this immobilizer. I haven’t found one similar case to compare notes with yet.
ANYhoo…..I hope to read through every one of these suggestions for some ideas. Thanks for starting this thread.
I'm sorry to hear that you have complications. It sounds grim. Can you get in touch with your surgeon and discuss your worries with him/her. Also just keep talking it out with friends and family. I think when on ones own so much it's really easy to get low and worry and go inward. Reaching out as you have done here really helps. I was so grateful to the people here who sent me supportive messages. You are not alone.

Time goes by slowly when you are unable to do much and I still find my mind can get overactive and go down negative routes and I have to be careful of that. Whilst these operations are very routine I need to remember that it's unrealistic to have been through major surgery and there not be a recovery process to get through.

I've noticed that we all are unique and the healing process is so very different for each of us, so I try not to compare. I think the fear of not being able to walk again is so common and understandable when our bodies are healing and just not able to move much yet. I'm sending you a big hug.
 
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PhilippaC

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I say if it starts to hurt take a rest. You don't have to complete all your walking in one session, possibly break it up over a few smaller periods of time during the day.
My primary doctor told me it's better to walk 10 minutes several times per day rather than trying to do 1/2 hour all at once.
I also walked around the house in the beginning months, I'd go around my dining room table 10 times, then switch directions! LOL!
I know for sure I'm still very protective of my hip, I don't want to fall again.
If you can drive going to a small store that has shopping carts is another good way to get some walking in but only do it if you feel up to it. Eman turned me on to shopping carts and it's a great activity and breaks up the boredom for sure.
Happy weekend.
That was so helpful myglasshalffull about just doing the 10 minutes of walking several times instead of a full 1/2 hour. That's what I've done today. Yes to a small shop and yes to holding on to the trolley! Many thanks.
 

Merrimay

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I learned early on to break my walking goals into three sessions to help prevent or control the throbbing or next-day setbacks. I've since read that doing shorter multiple sessions instead of one long walk can keep the metabolism higher, tho I don't know if that's true. At almost five months, I'm still breaking each day's goals into three shorter sessions. On good days, I do all 3 sessions. On sorer days, I consider one or two sessions a job well done.

I've also noticed that 3 shorter sessions keep my mood more cheery than one long walk does.
 

Newhip_Pol

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Hi @Merrimay,
Breaking down your walking goals into multiple sessions sounds like a great idea. :yay:

I'm still at the stage of walking about the house, getting up and down the stairs and short walks around the garden (when it isn't snowing) but I'll keep the multiple short sessions in mind as I hopefully increase activity over the next few weeks.
 

Jammy

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Hi @PhilippaC , I was just checking to see how you are doing. I am feeling "grim" and just shared, ha! I appreciated your posts to my litany of complaints and want you to know you've made a difference by sharing your struggles. I too, feel that everything is an effort--a huge effort! I hope I improve. I'm almost at 12 weeks. From reading people's posts on here, it looks like it would be "normal" to feel better in a year. Well that stinks! :sad:
 
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PhilippaC

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I read about people getting constipated with the heavy duty pain killers. I stopped mine, di-hydracodeine , after 10 days, having consulted my GP, as the feeling of being bunged up was so uncomfortable. Also I didn't like the 'spaced out' feeling that came with them (I'm sensitive to drugs generally). I went on to just the paracetamol the hospital gave me to take home and they did the job of controlling the pain and I was no longer constipated which was a huge relief. It might be worth experimenting, in conjunction with your doctors advice, with the painkillers to see what works. I had constipation despite taking the stuff they gave me to prevent it.
 

Layla

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Happy Two Month Anniversary, Philippa!
I hope you're doing well. Wishing you a lovely April and Spring 2023!
@PhilippaC
 
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PhilippaC

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Happy Two Month Anniversary, Philippa!
I hope you're doing well. Wishing you a lovely April and Spring 2023!
@PhilippaC
Aw...Thanks Layla. Yes Spring is here, finally. It's so nice to be able to be outside and watch the flowers coming out again. I've seen a butterly and the birds are tweeting like mad!

I'm doing a lot better now. The panic attacks have gone. I'm now in a bit of an in between stage which brings it's own challenges. Not feeling unwell and disabled any longer but still not able to do all of the things I would like to... but grateful that the worst is over. I still can feel a bit isolated but nothing like I did at the beginning.

My hip is almost pain free now and I can walk for about a mile. But I have to be careful not to overdo things. If I stand around for too long or try to walk longer it gets sore. I can walk around the house without any walking sticks and outside I still take one stick as my leg can get tired and sore all of a sudden. I still don't feel confident to get on and off a bus. I've still to go up and down flights of stairs and not looking forward to it really. I can do small ones ok. Up with the good and down with the bad has become a mantra! Driving is fine and I can now get in the car normally. I've not attempted a long journey and am happy just doing local things. It was great advice I got here.. to get a trolly at the supermarket and use it as support for walking in the early stages. I've done a fair amount of that as it has been cold and raining a lot.

I still take some ibuprofen from time to time, especially when I'm going to be doing more energetic things.

This hip has been very different to the previous one and I've had to learn to be patient as it is taking longer to heal. I was quite frightened at the beginning as the pattern was different ... fears of never being able to walk again, being permanently housebound etc came up and now looking back I can see they were senseless but a quite natural response all the same.

This forum has been so helpful... reading how others have coped, I've had lots of encouragement and some good advice and felt a lot less alone. Thank you all! And good luck with your recovery journeys.
 
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@PhilippaC I’m a month and a bit ahead of you and what you have written above totally resonates with my experience.
I find this site very reassuring (mostly).
I think when you speak to people who had the op two or three or more years ago, they look back with slightly rose-tinted glasses so it is good to hear from people at similar stages and to realise that a lot of what you are going through (which can be quite scary) is all quite common.
 

Newhip_Pol

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Hi @PhilippaC & @Gloucestergal65,
I'm coming up for 12 weeks next Tuesday and can identify with much of what you say. Progress with this hip is definitely slower. I'm still struggling with stairs and practising step up - step down as suggested by PT (15 leading with one leg then 15 leading with the other) both at home and, thankfully, now in a local swimming pool. Determined to be fitter than I was before the op!
 

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