Carol, I didn't want to blow up Chris' thread but I read where you wondered if I non tkr doctor would be experienced to help you. I would not give that a second thought. If anything I would feel they are way more experienced with the soft tissues, ligaments and tendons. The TKR docs are more about bone and hardware.
I meet so many people in my job who've had total knee replacements and 9 times out of 10, they tell me their knee is great. They never think about it. It's not swollen, never hurts, have great flexion and feels like a real knee. My heart would drop to my feet each and every time I heard this. I'd relay what was going on with me, swollen, can't bend, painful, TIGHT TIGHT clamp feeling, tight, full, never a waking moment that I do not think about my knee...they always replied, "something is wrong."
You know I was ignored by my first and second TKR doctor about scar tissue. I found my Dr. Lintner by talking to a customer in the store who had gone through the same symptoms as me. It was just a fluke that this woman and I met and it was such a life saver for me. After the revision, I knew I was growing scar tissue again, but since it's rare (supposedly) no one wants to listen. If your TKR started out reasonable, recovery, gradual ROM increase, no pain other than the pain of surgery healing and then it goes to new pain, loss of ROM, STRANGLING FEELING, you probably have scar tissue. No one wanted to believe me a second time, even my husband because, it was like..."no way, this can't happen twice!" But Dr. Lintner knowing the extent of my scar tissue listened to me a second time, finally my husband listened too and turns out my scar tissue was even worse this time than the first time and the first time it was horrible.
I think I just grow scar tissue from the huge TKR scar since it blankets like a sheet over my entire knee up into my quad. This time wrapping around the metal parts too, binding down my knee cap as well. I don't think I'd want to be 'opened up' for scar removal or to even have the spacer adjusted because I just think it would take off again. With arthroscopy you've got two holes and less chance of of a total scar take off again.
I hope you can find some answers, I know all too well what you are feeling. You have to listen to your own body and if you don't think it's right I have no doubt you are right. You can't let anyone say no you don't have this...because it's not like this or not like that etc., We know what we feel within our own body and know one else knows that but us.