Every doc I see against THR, may loose 7-30 surgery date

Status
Not open for further replies.
Hi All,I saw my Rheumatologist Tuesday, who also sided against the sugery.
In my experience, rheumatologists know little about joint replacement and almost always recommend against it. Never known one that did otherwise.

All these doctors are from the same medical group.
Well, that says it all! :doh: That's not independent opinions! They're chums, they meet in their coffee room at the practive or at the golf club and so never one will go against the other.

I am taking this time to follow all the recommendations of the joint replacement specialist, taking stronger anti-inflamitories, going back to Weight Watchers to get more weight off, seeking pain management.
Stronger NSAIDs are not good for your stomach, not long terms (i.e. longer than 3 months).

Since I have the choice, I will follow up with him once I have seen someone about the pain.
But you do have a choice! You do!

He said he would recommend regular x-rays to watch the progress of the hip, so really, that's all I can ask for at this point since I can't do anything about it, there is no time to seek out another surgeon and get this done in the time frame I have left.
And what would tha avail! He knows what your hip is like, what's the point of just monitoring it - so he can watch it slowly get worse?

Anyway, how do you mean "in the time frame I have left"? I thought your op had been cancelled? :sct:


I don't have many alternatives for now, but I do have plenty I can research and see what can be done next summer. It really does sicken me to think of having to deal with this for another year. I am scared I won't get my pain managed, but if by chance I do, that will make the wait more tolerable. I am slowly coming to a place of acceptance, with the limits I have on when I can have a proceedure done during the year, it makes it very hard to get my needs met, but you can make very sure I will do whatever it takes to make sure I get this done as soon as I can, which, for now, is May of next year! UGH!
I think you are justified in that anxiety, having watched my sister attending a pain clinic while she was waiting for them to sort out the mess they'd made losing her notes and xrays!

I'm sorry to burst your balloon of acceptance but I think you are wrong. You need to go to somewhere away from this practice and get a truly independent opinion. I've worked with some really ace hip surgeons and they rarely found a hip that was either 'not ready' or 'too bad' to be done. Nancyo will back me up on this. It just doesn't go that way. And I still say, if he is concerned about the age or weight factors, why has this surgeon done your knees? They can be far more problematic in the younger or overweight patient than hips and even then not by that much.

I hate to think of you sitting there quietly enduring all this - I watched my sister do that for over 18 months and I cried often for her. Please don't let it happen to you. Go to another practice, away from these miseries and get another opinion. Please, please do.
 
Hi All,
Again, thanks so much for all the kind words and support, it is proving to be a very stressfull time and all of this does help!

Just to answer the hardware question. I live in So. Cal. it's been the practice here to leave the hardware in for 18 months, then remove it. I have heard where that line of thought is changing, just from the risk of infection, but my OS still plans on removing my hardware and I want it out. My first fusion I had a loose screw, let me tell you, having a 2 inch screw wobble around in your spine is no fun! I have felt amazing since my amount of hardware was reduced from 6 screws to 4, I bet I will feel even better with no screws in there. I popped right back from my last fusion, almost like I didn't have surgery at all, so removing the hardware alone has got to be a lot easier, and I actually look forward to that one!

Back to my hip. I really don't see what choice I have but to buck-up, accept what has been dished onto my plate and deal with it the most logical way I can. I will most definately be looking into other doctors, getting more opinions, you name it. My goal is to get my hip done next summer and I will find a way to do that. My only real concern is getting thru this upcoming working season of mine with this hip. I have endless problems getting pain meds already from my current OS, huge loss of connection between their refill department and the doctor's office, plus he is only in 2 days a week, so I never have a decent access to pain meds right now. If all I can get from pain management is a reliable source of pain meds, then that is a huge improvement.

My rheumatologist felt sure the stronger anti-inflamatories would give me some relief and had wanted me to try them for a month. He switched me from Naproxen to Meloxicam, I guess we will see how that works now.

I have not looked into resurfacing, that was never an option that was given to me, I will check into that as well.

Thanks again for all the advise, it's what I need!
...Lisa
 
Lisa, can you describe what your work is? I know you feel that you couldn't possibly have surgery from the months of September through April, but why is that? Recovery from hip replacement surgery is not as extended as a knee replacement. Maybe with all of our heads together, we could figure out a way you could have the surgery before next summer.
 
Lisa, Go and get some independant opinions....even if your insurance doesn't pay up for it.....I agree with Jo, you need someone who is not just part of the same practice, someone who has no allegiances. I think you need to get a bit stubborn....just accepting the situation doesn't get you out of pain. i have a friend who needs his knee replaced but has been told he has to wait until he is 60....his knee is virtually fixed out straight. I hate to think what his work (he's a green keeper) is doing to his back and hips etc not to mention the knee. Of course he is loyal to the doctor who stuffed up the reconstruction....so now he lives with it. At this stage he is not in pain so I guess thats a bonus.....but he can't kneel, squat etc so I don't know how he is managing the whole weeding thing....

Be stubborn and find a surgeon who will actually listen to your needs and problems....
Rachel
 
Lisa,,
I just read you are in socal. Me too. I have an awesome hip/knee surgeon. He is in Pasadena. Where are you? I live in Sierra Madre (next to Pasadena) I would love to help you. I am sure you could get an apt within a week or 2 for my doc. I love him, he is great with pain management too. I first replied to your post with lots of similariities, I also have a rheumatic condition, spine issues with more spine surgery soon, lots of hardwear although no talk of it coming out. I am out of town until the 4th of Aug, but would love to get together and help.
judy
 
I rarely chime in on specific medical issues, but in this case I'm going to make an exception.

First, there is NO "magic" age. There is however, or should be, a point where more than one doctor can agree that a hip replacement is the best solution for you at this time.

I got three opinions even though none other than the first one were required by my insurance company. I wanted to 1.) Reassure myself that this was the right thing to do, and; 2.) Get a consensus on the best appliance to use for my cicumstances. After this assurance, I mentally was able to get prepared to go ahead with the procedure.

I don't think I could have gone ahead with the surgery if I had only 1 out of 3 doctors saying I needed it and the other 2 saying I didn't...

If some of these doctors are not orthopedic specialists, move on and get a fresh set of eyes looking at your scans.
 
Lisa! You WANT to sat in pain for a YEAR??? Of course you're kidding!!!!
 
Lisa,
I've been re reading your posts and I again am so sorry for everything your having to go through. Lisa after all has been said, I suggest that you go back to Jo's post and read it again. She would never steer you wrong.
We all want you to have the best possible care and a life with no pain. The entire reason for our forum is to make sure that patients know what's available for them in this world of joint replacements. Listen to what our group is saying. You need to be aware of other options besides the medical group that you've been dealing with.
Post often and let us know how your doing.
Blessings to you
Nancyo
 
..... then the 3rd opinion, that agreed there was significant loss of cartiledge and it was degenerating fast enough to see total loss within a year, he agreed with my OS on THR.....

..... instead recommended I seek pain management from my primary care doctor and try waiting until I am 60, I am 48 now. :shk:

I saw my rheumatologist yesterday, who at first was dead set against the replacement as well, but after hearing my reasoning, and my position, he felt that I should try stronger anti-inflamatories....:doh:....told me to give those a try for a month, and if they don't work, then maybe the THR is my best bet. So, a vague, kind of an approval from him, but he told me he wasn't going to post an opinion on the surgery in his notes. :skp:

...... trying to deal with getting my pain taken care of for an indefinate length of time scares me. The pain is the worst I have had, far worse than anything with my knee being bone on bone before being replaced, a degenerating spine, nothing compares to the hip pain. Plus, I have never gotten so much flack over a surgery before. :hissy:

Sorry I have rambled on so, it's just so frustrating. I see my OS this afternoon and I will know my fate by then......:shk:

Thanks so much...Lisa

I just wanted to 'chop and piece' this a little to make a point.....to ME ( just my opinion..) it sounds like your 'surgical group' is a LOT like a bunch of monkeys trying to (bleep!) a football in the rain...! :blush:

PLEASE PLEASE PLEASE get FAR away from these people listen to Jo and the others, and take Judy's offer to see her Doc!
Lee
 
Hi Lisa We all agree, we hate to see you sit in pain that long. That is a really long time when your in pain. I sure hope someone can help you with this and its taken care of quickly....Take care of yourself . I wish only the best for you.
 
:agree: :agree: :agree: :agree: :agree: :agree: :agree:

I think this is a group protest!
 
Oh Jo, you are so right! We sound as if we're being critical and that's NOT what we mean at all!
Lisa, what we're trying to say is that we've all been through so very much, just like you. We hate to see you having to wait another entire year when we know there is a better life just around the surgical corner. Honestly we feel that you are being railroaded by a group who are in control of your medical destiny and we want you to take charge and look elsewhere for better treatment.
The only reason for all our cussin' and discussin is that we care and we don't want you to hurt. The final decision is always yours. We just want you to know your options, and there ARE other options out there.
Judy ([email protected]) would be happy to share the name of her doc and he sounds terrific. He must be close to your area.
We don't mean to be so critical..... we've just been down this road before and we're trying to save you a few bumps.... ok? Love to you always.........Post soon!
Blessings~~
Nancyo
 
Hi to everyone!
Thanks so much for the outpouring of advise and concern.

I am going to look into going outside the medical group for another opinion.

Don't get me wrong, I am not denying what any of you are saying is true, I know you all know how this feels, what it feels like and how frustrating it is. That is why I came here, after going thru having my knee replaced with the help of a forum, I knew I would get the facts and reputable advise here.

I own my own business and I make and sell my own stickers and apparel at a recreational area about 3 hours from here. I work all week making stickers, (sitting), embroidering and screenprinting apparel, (standing). My season there is from the start of October until the end of April. I set up a shop there that I open every weekend, and holidays are huge there, very busy. Since we rely heavily on the success of our season, I cannot be down at all during that time. I am the only one who makes all the product. My husband and I both do sales, but he has a full time job of his own to worry about. Needless to say, as much as I wish there was time in there to look after myself, there is not. That time is non-negotiable, I cannot miss work or I loose money. So now, with loosing my surgery date, I have to wait until next May before I have any time to do a surgery.

I am sorry if I didn't make myself clear before, but no, I am not having surgery the 30th, and the time frame I am now dealing with is getting other opinions before next May, when I can have something done with my hip.

I most certainly don't feel as tho any of you are being critical of me at all. I welcome all of your opinions, I am stubborn in my own right, but I can take advise and will do so. I just don't have any time for surgery left, so now I am in the position of having to deal with this, which, I will admit has been quite the blow to my mental state. It's hard to think of dealing with this pain for longer, it was hard enough going thru last working season with it, but I really felt I had a light at the end of the tunnel I was working toward, but that light got shut off, now I need to get another one turned on!

I have had a couple people offer me the names of doctors that they liked, and, like I said, I will look into what it will take to go outside the group. I must say that I did get doctors going against each other in my group, my OS was the one who was looking for someone to agree with him, it was everyone else who did not agree with him, so no buddy, buddy pal stuff going on that I saw, they were flat out disagreeing with him, so not sure all doctors in the same group automatically go the same way the wind is blowing.

Just to be specific and get my story straight. I see OS-1, on a regular basis, he did my knee and spine surgeries. My hip started giving me problems just after my last spine surgery last July. My groin was killing me after only sitting a short time. I thought it was my spine, OS-1 did x-rays, said no, it was my hip. He did a CT Scan and saw that my hip was almost half way bone on bone. He watched it for a while and the pain just got worse, he sent me to OS-2 for a second opinion. OS-2 Said the scan and x-rays did not show enough deterioration of the hip, nothing there required surgery at that time. My OS-1 did a bone scan and MRI before sending me to OS-3 for a 3rd opinion. OS-3 took x-rays in April and compared them to x-rays OS-1 took in November. Comparing the two, they showed a dramatic loss of cartiledge from November to April, so OS-3 agreed that a replacement was in order. Then came the last visit I made to OS-3 to see if he could do the surgery, he took another x-ray and the difference between April to July showed very little difference. He felt the hip had showed it stabilized somewhat and that it should be watched, but that it should not be replaced until it was 100% bone on bone. Hopefully spreading the history out like that helps somewhat.

I need to find someone who can at the very least treat this pain issue that I am stuck with. My OS-1, goes on vacation next week, which leaves me with noone to prescribe pain meds for me. I have not had any sort of continual attention to my pain, I have to deal with a lot of it. From your postings, I take it pain management isn't going to work, so going to need to figure something out. I actually have not been contacted in any way about pain management, so no telling if that will even materialize.

Just a bit of insight here, I have, in the past even tried medical marijuana for the pain, it's legal here, had my prescription and everything, then decided it wasn't for me, I didn't care to run around high all the time just to numb the pain a bit, so I didn't get the rave results some do.

I don't want any of you to stop offering your opinions, I value them, I really do. I will be looking into my options for leaving the medical group, and I will let you know what I find out, thanks so much all!
Lisa
 
Lisa
That did clear up a lot for me. Except don't the OS's have specialties? I go to an orthopedic group where they have their own area. So for instance I have a hip surgeon (hip/knee) and I have a spine surgeon. So there would only be one opinion.

As far as pain management, I have been seeing a pain management doc. I am switching to someone else in 2 weeks (long story). Anyway I have been trying to wean myself a little off my long acting morphine. Let me tell you I don't ever feel any different when I take it (twice a day) but I can tell the difference when I dont;' take it. My spine doc just told me that only pain management docs are allowed to write the prescription for morphine. So you could get more help from them. I would call and see if your insurance plan has one you can go to. It does make a big difference.
judy
 
Exactly, Judy! I've never known a surgeon that did knees and hips much less knees, hips and spines! And I still can't get my head around the fact that he was perfectly willing to do two TKRs (and bilateral at that!) on here and yet is baulking at doing a hip! It's illogical. Knees are much more problematic for younger people that knees in that revisions for hips are much less problematic. Just does not compute.

Still, I'm glad you're waiting for your own decisions, Lisa and not just because of this chap.
 
Hi All,
I got my letter of acceptance into the pain management program yesterday, it was a great relief to me. I know it has been said here they can't do much, but others have told me they can, so I guess I will find out for myself.

I have to say, I never gave it a second thought that the same surgeon was doing different parts of my body. I have seen people in his office with all different parts worked on, I even saw a guy there who was in a motorcycle accident and a car had clipped his hand, he was so happy that he was regaining the use of his hand, thanks to the same doctor who did my knee, did my spine. I guess it's all in what you're used to or the options provided by your insurance.

But no, there are no Orthopedic Surgeons that only do one area in the medical group I belong to, and I don't belong to a small one, Riverside Medical Group via Health Net. It's all I have ever known, and I guess for that reason I am comfortable with it. My knee, eh, it's not right, needs a revision that I refused, pain is not that bad, but my spine feels awesome, so happy with that. I will be looking into other doctors about my spine, but I do have to admit, I will also be checking back with OS-3 and seeing what he will do about keeping tabs on my hip, covering all my bases.
Thanks so much!...Lisa
 
Status
Not open for further replies.

BoneSmart #1 Best Blog

Staff online

  • Jockette
    Staff member since March 18, 2018
  • Layla
    Staff member since November 20, 2017
  • Pumpkin
    Staff member since March 26, 2015
  • djklaugh
    Staff member since December 30, 2020
Back
Top Bottom