Revision THR Complex Revision poor outcome Ehlers Danlos

[Layla]

It sounds like you found a wonderful surgeon to work with. You expressed confidence in him and the fact that he’s sympathetic to what you’ve endured certainly makes him more likable. I hope you’re able to move forward soon so you can begin healing.
All the best wishes for you! Please keep us posted.
@Flowerfloosey69

 

[Pumpkin]

Happy to hear you found someone who understands Ehlers-Danlos, and is sympathetic.
Sounds like he did a thorough evaluation and has some promising ideas about how to approach your hip.

 

[Pairodocs]

I hope after 2 weeks that you are feeling back to normal. I was wondering if you found out what caused the pain on your right side at the ribs. Could it be Costochondritis (Costro)? I ran across this statement from a patient with Costro "due to the daily intense pain on the left side of my ribs under my breast bone (burning, stabbing, bruised feeling" . It sounded so much like your problem. If that is a possibility I'll tell you my tale on Costro.

We were going to the ortho on the same day, last Tuesday. Mine said I was probably right that I had proximal hamstring tendonitis. He recommended trying PRP or stem cells. I'm trying to make an appt with a rehab dr to get that done.
How did your appt work out for your 2nd opinion?

 

[Zoebichon]

I'm just catching up from seeing my name tagged earlier. I'm almost 5 years in with a dual mobility cup. From my perspective they are becoming more widely used for both more physically active THR recipients and for those potentially at risk for dislocation for various reasons. That said, and I'm assuming has been echoed through this and other threads, the key to success is a high volume surgeon comfortable with their chosen prosthesis. I wouldn't ask a surgeon to go this route if they weren't already doing it. In my case, my chosen surgeon was using dual mobility for all his THR patients. I'm not sure where you are located. I'm in Seattle area if you need recommendations up here Best of luck to you - sounds like you are due for a turnaround.

I’m also from the Seattle area. I never discussed hardware with my OS but I read my after surgery notes online and was surprised and, I guess, pleased to see he used the duel mobility cup. I am active so maybe that’s why? He grilled me at length about my activities beforehand.

 

[MsJunebug]

Hello,

So sorry to read about your repeated dislocations.I just happened to check in on the forum tonight because I’m experiencing a lot of pain from my hip all the way done to my knee. Both replacements (LTHR) and (LTKR) are hurting. I’m thinking it’s an iliotibial band issue or tendinitis.

Anyway, I was diagnosed with hEDS by a geneticist in 2016 after all the tendons and ligments in my right foot and ankle spontaneously ruptured. My LTHR was done in January 2020 and the surgeon did use a dual mobility implant due to my Ehlers-Danlos. He’s the same surgeon who did my LTKR in 2017. He seems to have a good grasp on EDS.

Although I did get relief from that awful bone on bone pain with both replacements, I’ve never been completely without pain. Seems to be some sort of inflammatory issue because I feel wonderful and totally pain-free only when I’m on high dose steroids. Unfortunately, I don’t take them very often because of the major side effects.

Wishing you good luck with your revision.

Debbie

 

[Flowerfloosey69]

I just received a large binder that is very well done and answers almost every question one could ask before hip replacement. It was put together with collaboration with nurses and PA's and surgeons. I have to say after receiving a personally written note after my first visit with my new surgeon, and now this binder, this guy has his act together! I no longer feel intimidated asking questions.His protocols are well thought out and practiced. My surgery will be performed in a joint replacement center( a hospital within a hospital with nurses that only work with joint replacements.. I am looking forward to getting this behind me!

 

[Flowerfloosey69]

Hello,

So sorry to read about your repeated dislocations.I just happened to check in on the forum tonight because I’m experiencing a lot of pain from my hip all the way done to my knee. Both replacements (LTHR) and (LTKR) are hurting. I’m thinking it’s an iliotibial band issue or tendinitis.

Anyway, I was diagnosed with hEDS by a geneticist in 2016 after all the tendons and ligments in my right foot and ankle spontaneously ruptured. My LTHR was done in January 2020 and the surgeon did use a dual mobility implant due to my Ehlers-Danlos. He’s the same surgeon who did my LTKR in 2017. He seems to have a good grasp on EDS.

Although I did get relief from that awful bone on bone pain with both replacements, I’ve never been completely without pain. Seems to be some sort of inflammatory issue because I feel wonderful and totally pain-free only when I’m on high dose steroids. Unfortunately, I don’t take them very often because of the major side effects.

Wishing you good luck with your revision.

Debbie

Debbie, I'm so sorry to hear you are still having pain! I agree about steroids!
My new surgeon is reluctant to use a dual mobility cup because of removing the cup from the last revision 7 mos ago. He said he would have to use a larger cup which means he would have to cut out the old one. My bone is not healthy enough. My preop is on the 7th so I will be able to hear his final decision on a DMC.

 

[myglasshalffull]

Wow, that's a lot of dislocations, how unfortunate for you.
I have a friend that has experienced several dislocations as well and I think about that every time I try something new.
I don't think I'll ever just get out of bed and not think about having a new hip.
All my best on your upcoming surgery.

 

[Flowerfloosey69]

Wow, that's a lot of dislocations, how unfortunate for you.
I have a friend that has experienced several dislocations as well and I think about that every time I try something new.
I don't think I'll ever just get out of bed and not think about having a new hip.
All my best on your upcoming surgery.

Thank you myglasshalffull