Cakes2114
junior member
- Joined
- Apr 10, 2020
- Messages
- 52
- Age
- 46
- Gender
- Female
- Country
-
United States
I am a complicated situation according to my doctor.
9 knee surgeries mainly for patella dislocations through my early 30’s. At 41 I went to three doctors who all felt I needed a TKR. Had that surgery on 7/11/18. Initially I was flying though physical therapy (I had done it many times before) but I could not get full extension. They did a scope for adhesions 11/2018.
February 2019 I was declining and started limping and had pain. Finally got in with the OS who did the surgery. He initially kept saying this is normal recovery but did a fluid draw which came back in March as a Staph infection. Three weeks of oral antibiotics and then a new culture for 7 days I was infection free!
I started feeling good again and found myself being able to walk and do things again.
I did have allergy testing in June per the suggesting of my General Practitioner. He agreed my knee may feel better but it was still grossly swollen and looked off!
In August 2019 I started having pain again. I ignored it initially (I am a Mom of a 11, 9 and 7 year old) and we are busy! October I hit my point and called the OS. I spoke to the PA and explained my issues with swelling and concerns with pain.
She dismissed me and said there are no more surgeries that can be done and to keep my appointment for January. She then said if the doctor approved she would send in a script for me. Well they sent me Celebrex which I am allergic to and found out a few months after my TKR (guess they never marked it down). I called up and reminded them I was allergic to Celebrex (and reminded them this was found when I was a patient). The PA said she would talk to the doctor. I never got a phone call just a script for Naproxen sent you me. No return call.
By November I was struggling a lot so I spoke to my PT and they suggested HSS in NYC.
Then I fought with the office to get my medical records. They were switching to join a major Orthopedic Group and just would not sent my records. By December I got fed up. I called and demanded my medical records or my lawyer would be contacting the office. Within a week I got all of the written files. I then had to go and get my original MRI from before the TKR from the facility I had it out since the OS office would not release.
I then sent that to HSS to Dr. Bostrom. Again I was missing some information (XRays) so I went to the hospital to get those. I sent those to HSS too.
I finally got a call back from HSS in late December saying that Dr. Bostrom would take me as a patient.
My appointment was in February. They did new xrays, MRI, blood work and took a fluid draw from my knee. Dr. Bostrom said he did feel my knee was not stable and my patella alignment was very off. After three weeks Dr. Bostrom called and said I was complicated. The initial 7 days showed no infection but by day 21 there was something. P acnes infection on top of the joint not being stable.
I was scheduled for a two stage revision of the TKR on March 23, 2020. Needless to say this was cancelled for the Coronavirus.
I am currently struggling more everyday. Nights are miserable and days are difficult. My knee has started to give out and it is extremely stiff.
I am rescheduled for June 18 for the first part of the two stage revision. As the days pass I am getting more and more concerned that surgery may not happen.
I completely understand right now is not the time for an “elective” surgery but if this surgery does not happen in June I am going to lose my mind.
9 knee surgeries mainly for patella dislocations through my early 30’s. At 41 I went to three doctors who all felt I needed a TKR. Had that surgery on 7/11/18. Initially I was flying though physical therapy (I had done it many times before) but I could not get full extension. They did a scope for adhesions 11/2018.
February 2019 I was declining and started limping and had pain. Finally got in with the OS who did the surgery. He initially kept saying this is normal recovery but did a fluid draw which came back in March as a Staph infection. Three weeks of oral antibiotics and then a new culture for 7 days I was infection free!
I started feeling good again and found myself being able to walk and do things again.
I did have allergy testing in June per the suggesting of my General Practitioner. He agreed my knee may feel better but it was still grossly swollen and looked off!
In August 2019 I started having pain again. I ignored it initially (I am a Mom of a 11, 9 and 7 year old) and we are busy! October I hit my point and called the OS. I spoke to the PA and explained my issues with swelling and concerns with pain.
She dismissed me and said there are no more surgeries that can be done and to keep my appointment for January. She then said if the doctor approved she would send in a script for me. Well they sent me Celebrex which I am allergic to and found out a few months after my TKR (guess they never marked it down). I called up and reminded them I was allergic to Celebrex (and reminded them this was found when I was a patient). The PA said she would talk to the doctor. I never got a phone call just a script for Naproxen sent you me. No return call.
By November I was struggling a lot so I spoke to my PT and they suggested HSS in NYC.
Then I fought with the office to get my medical records. They were switching to join a major Orthopedic Group and just would not sent my records. By December I got fed up. I called and demanded my medical records or my lawyer would be contacting the office. Within a week I got all of the written files. I then had to go and get my original MRI from before the TKR from the facility I had it out since the OS office would not release.
I then sent that to HSS to Dr. Bostrom. Again I was missing some information (XRays) so I went to the hospital to get those. I sent those to HSS too.
I finally got a call back from HSS in late December saying that Dr. Bostrom would take me as a patient.
My appointment was in February. They did new xrays, MRI, blood work and took a fluid draw from my knee. Dr. Bostrom said he did feel my knee was not stable and my patella alignment was very off. After three weeks Dr. Bostrom called and said I was complicated. The initial 7 days showed no infection but by day 21 there was something. P acnes infection on top of the joint not being stable.
I was scheduled for a two stage revision of the TKR on March 23, 2020. Needless to say this was cancelled for the Coronavirus.
I am currently struggling more everyday. Nights are miserable and days are difficult. My knee has started to give out and it is extremely stiff.
I am rescheduled for June 18 for the first part of the two stage revision. As the days pass I am getting more and more concerned that surgery may not happen.
I completely understand right now is not the time for an “elective” surgery but if this surgery does not happen in June I am going to lose my mind.