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Bilateral acetabular protrusion

Discussion in 'Hip Replacement Pre-Op Area' started by lexi, Apr 14, 2017.

  1. lexi

    lexi junior member
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    Hello,
    I am a 29 year old with degenerative hip disease with bilateral acetabular protrusion and bursitis from the Mayo Clinic.

    The doctor recommends cortisone shots and is trying to get me into another doctor to shave my bone on my right hip because it seems like it catching and it locks up. If not then he wants to do cortisone on the joint. He says I need to wait for hip replacements but will eventually need them.

    I want hip replacements because it is hard for me to move, and I also want to get pregnant soon, and worry how my condition will affect pregnancy. Today I got cortisol into my right bursa.

    I am so frustrated that I just want to move but have seen two orthopedic doctors and neither of them are ready to do the replacements on me. Any advice is appreciated.

    hips.jpg
     
  2. Irish Joe

    Irish Joe FORUM ADVISOR Forum Advisor

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    @Josephine
    Sorry to read about your issues and so young.
    I'm not an expert and I usually wait until @Josephine or someone comes along to comment first.
    But.
    There are many young people who have had hip replacements on this forum and I urge you to seek out there threads. I also know a girl exactly the same age as you who had both hips replaced a year ago and is fine now.
    Could I suggest that you seek out a surgeon who Specialises in younger people and see how you get on.
    I hope you get things resolved.
    Joe........
     
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  3. houndmom

    houndmom junior member

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    Hi Neighbor! I have acetabula protrusio as well, getting both hips done in May. But I am 50. Although my current surgeon thinks it could have been done sooner (I have had the condition since birth, hip fusion at 12). Looking at my X-rays, he did wonder how I had kids, he figured I had to have had a C section. So before getting pregnant you may want to share views of you hips with your obgyn. We adopted so birth did not affect me at all but range of motion and hip pain made it hard to baby Bjorn the kid let's around.
     
  4. lexi

    lexi junior member
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    I didn't think of talking to an OBGYN, I think that will be next on my list. Thank you so much.
     
  5. alexthecat

    alexthecat MODERATOR Administrator

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  6. lexi

    lexi junior member
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    Thank you, although I have not had any hip surgeries yet, I am curious about how my hips will hold up without surgery, or I should insist on surgery. Especially with my very limited range of motion.
     
  7. Josephine

    Josephine FORUM ADMIN, DIRECTOR Administrator

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    Well I had a close look at your xrays and you are certainly not suitable for shaving procedure (usually known as a hip athroscopy) because you not only have pronounced protrusio (blue arrows) but also arthritis (red arrows).

    hipsa.jpg

    I would also suggest you get these hips squared away before getting pregnant as I doubt they will survive a pregnancy. This is a mild version of what happens if the acetabular (joint) floor gives way

    protrusio extensive.JPG

    I suggest you ditch these two ortho surgeons as they don't appear to have your best interests at heart. You need to search out a hip surgeon who lists "Arthritis in the Young Adult" amongst his interests.

    There is also no such thing as 'too young' to get hip replacements. We've had a number of members in the 30s, 20s and even teens who were in your situation and had hip replacements.

    You might like to see our star, shugaplum, who had her hip done at the tender age of 24 and two years later gave birth to a fine baby boy!

    ai58.tinypic.com_jt6xa8.jpg


    We've also have no less than four 15 year olds that have had replacements - you might like to read their threads which are here Teenage hip replacements
     
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  8. lexi

    lexi junior member
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    Josephine,
    Thank you for all your input. This is very helpful. I hope someone will be able to help me soon. Thank you
     
  9. Jamie

    Jamie ADMINISTRATOR Administrator

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    @lexi, you can search out surgeons who work with younger patients by calling clinics in your area and asking that question. If you need some help, I can provide that as well. Just let me know what city you live in.
     
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  10. lexi

    lexi junior member
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    Thank you Jamie, I live in Maple Lake Minnesota and so far I have seen Dr Daniel Berry at the Mayo Clinic in Rochester and Dr Hunt at Twin Cities Orthopedic and both told me I had to wait. Thank You!
     
  11. houndmom

    houndmom junior member

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    Try Summit, they are in several places in the Cities.
     
  12. Josephine

    Josephine FORUM ADMIN, DIRECTOR Administrator

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    But are you taking it that this opinion would be echoed by all other surgeons? I do hope not because I think I've given you more than enough evidence to show that not all surgeons will think like that.
     
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  13. Jamie

    Jamie ADMINISTRATOR Administrator

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    One of the problems is that most surgeons don't seem to put the information in their online bios that they work with younger patients. So it may be difficult for me to find someone for you.

    Before I start a hunt, here is a suggestion. Call the Mayo clinic appointment line and pretend that you are a new patient looking to find a doctor who works with younger patients for hip replacements. See if they have a surgeon on staff. It is possible that you just got hooked up with the wrong one and I believe they surely have someone on staff that understands you must have your hip replacements done now.

    Let me know what you find out and we'll go from there.
     
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  14. Josephine

    Josephine FORUM ADMIN, DIRECTOR Administrator

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    Good idea, that gal!
     
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  15. lexi

    lexi junior member
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    Okay, called the Mayo Clinic, they are waiting on Dr. Levy to review my case and is supposed to get back to me. This is for the bone shaving, but they won't let me search out for another doctor until this process is finished. I would love to find a doctor that would do hip replacements but I just haven't found that doctor yet.
     
  16. Jamie

    Jamie ADMINISTRATOR Administrator

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    I guess I should have been more specific. When you call, you must pretend you are a totally new patient looking for a surgeon who works with younger patients. You can't tell them you've seen anyone there already and you cannot give them your real name because they might look you up in their system.

    You have a couple of choices. You could try again as a total stranger looking for a surgeon. You could wait and have a serious talk with your Dr. Levy and insist that you cannot wait until your hips worsen. Or you could start calling other practices in your area to ask about surgeons who work with younger patients.

    Or....you could do all three! Don't be shy and don't worry about stepping on anyone's toes. This is your health and your life you are dealing with. Many times we must be very assertive to get the treatment we need. Doctors are just human beings after all and not perfect.
     
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  17. lexi

    lexi junior member
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    I did intially act like a new patient, but then they were going to look at the doctors schedule and that's when I told them I am already a patient there. Then they looked at my notes and told me I had to wait. I think I will wait on the Mayo Clinic as well as calling around.

    I have an appointment on May 15 to see Dr. Paul Yellin at summit ortho. I am going to request all my records from the Mayo Clinic so I can bring it with me. Hopefully this time things go a bit different.
     
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  18. Jamie

    Jamie ADMINISTRATOR Administrator

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    Great! If you get in that position again where they are starting to look at a specific doctor's schedule, don't let that get to you. It would have been okay to have (assertively) said, you aren't ready to schedule an appointment just yet, you are researching to find doctors who work with younger patients. If the person you're talking to cannot provide that information, ask for a number to the nurses in the Orthopedic clinic so you could question them.

    But it sounds like you've done the right thing by seeking out another doctor to consult with. Good for you! When you meet with him, talk about the acetabula protrusio and the risk of pregnancy with your hips in the condition they are in. Good luck!
     
  19. lexi

    lexi junior member
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    Thank you so much, I feel so grateful to be able to talk to guys!!
     
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  20. houndmom

    houndmom junior member

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    I saw him!! He bumped me up to Dr. Nestor. He seemed nice though. He was the one that asked how I had children.
     
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