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[TKR] At my Lowest point

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vjice00

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@Celle as you said I had extensive scar tissue. This is what it look like when he went in, I can't even see the knee replacement. My adhesion surgery was June 15th 2019
 
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vjice00

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@Celle tried to send imaging but I can't seem to upload it
Screenshot.jpg
 
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Celle

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Thank you for your surgery date. I've added it to your signature.

Some of your images loaded all right. I'm not good at reading that sort of image and Josephine, our expert, is on extended leave, recovering from having a Revision TKR herself.

I've edited out the two images that were just black boxes.
 
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Jamie

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@vjice00 .... I'm so sorry to hear of your accident and sudden need for a knee replacement last spring. You've certainly had a time of it in recovery, but I'm glad you're coming to realize that any type of aggressive therapy is not for you. As Celle described, for some people pushing like that in therapy can actually promote an environment where adhesions can develop.

Treating adhesions properly is unfortunately a skill that not a lot of surgeons have. However, there are some specialists who work routinely with this problem. Would you be willing to travel to see someone like this? If that's not possible, we'll try to work within your local, driveable area to find someone for a second opinion. Are you being treated under Workman's Comp? That could make a difference in what you are allowed or not allowed to do.

In the meantime, is it important that you minimize any therapy, exercise or activity that might keep those tissues inflamed and hot.

There is a surgeon, Dr. Michael Terry, in the Chicago area who was doing some work with arthrofibrosis patients some years ago. I don't know if he's still involved with that or not, but it would be worth a call to his office.


Please tag me in any post where you need my assistance so I will see it and respond faster. To tag, you type the "at" sign (@) followed by the username with no space....like this..... @Jamie
 
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vjice00

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@Jamie I feel like you are the only one that understands my case my doctor remove the adhesion and sent me back to therapy to do the exact same thing that probably caused the adhesion at first. Yes this is a workman's comp case through the United postal service so I am at a limit of things that I can do but, I did talk to my adjuster who also said it was okay for me to see a second opinion. I don't know if I can actually go out of town to see someone but I know I can do in state and get my insurance to pay if need be. I was so bewilder about finding another doctor it is not easy because I ran into no one wanted to touch another doctor's work or it was too soon they wouldn't see me before year. I will also love to see a doctor who actually understands my case so if you can point me into any direction that will be the best help for me right now I did hit the link that you sent and I don't know if he would see me about Annie he specializes in shoulders and elbow but I will give him a call and any other recommendations I will gladly check into them thank you in advance.
 

Jamie

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Yes, I noticed that his bio says sports medicine, shoulders and elbows. But, since he is right there is Chicago, it wouldn't hurt to call his office and ask if he still works with arthrofibrosis patients. This is not technically a "knee" problem since your implant is fine. So if you can locate a surgeon who understands how this type of tissue forms and reacts following surgical trauma in some people, you may have success. There is that "one year" thing sometimes, so I'll keep my fingers crossed that we can get you to someone now without waiting. I'm thinking that would be one year from your TKR, though and not the lysis procedure. So.....even at that, January is just around the corner.

I'm going to tag one of our staff members, @skigirl, who had a successful lysis of adhesions. She is also the one who compiled the list of surgeons working with this problem as it was a discussion during a conference she attended several years back. She may be able to tell you more details about all this than I can.
 

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