Am I in denial?

EmEm

member
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May 17, 2017
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67
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United Kingdom United Kingdom
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Hi, I have read a lot of the recent threads and I’m in awe of how you support each other and wondered if someone was able to give me a reality check.

I started having a problem with my right hip a year ago when I noticed it was difficult to get my right leg onto the opposite knee to put a sock on and getting out of the bath was more difficult. I had some pain and felt that when I walked I was not putting my right foot down normally. Also I couldn’t straighten my leg when I was lying on my back.

I tried some physio (self-referred) and after a couple of sessions was sent to my GP who ordered an x-ray. This showed no reason for the pain. The GP then gave me exercises and suggested swimming as he thought my hip was tight due to lack of exercise. The exercises increased the pain and made it difficult to walk.

Moving on a couple of months, I talked to our insurer who sent me directly for an MRI scan (the most painful 30 minutes ever, due to the position I was put into) and then to an OS in December 2016. This is the scan report:

“There is a moderate right hip joint effusion. Moderately severe osteoarthritic change is demonstrated in the antero-superior aspect of the right hip joint where there is full-thickness articular cartilage loss and subchondral bone marrow oedema in the acetabulum. There is also patchy subchondral bone marrow oedema in the femoral head with more geographic oedema in the femoral neck.

The anterior acetabular labrum is degenerate in signal with a tear at the base of the labrum at 3 o'clock and also further tear at 5 o'clock inferiorly.”

The OS, who is highly-regarded both privately and in the NHS locally, showed me the scan and suggested a steroid injection as pain relief and also as a diagnostic tool to see if it helped the mobility of the joint. After 3 days (Christmas Day!) I had almost complete range of movement in my hip and was almost pain free. The latter lasted 3 weeks and then after walking I was suddenly in agony again. It took over a week to calm down enough to put weight on it. I could only get upstairs by going on my hands and knees.

I had a big trip planned to New Zealand in March/April and the surgeon and insurer agreed another steroid injection to tide me over because episodes of pain made me fear I would have to cancel a trip of a lifetime. I coped (and had a wonderful time) but found sitting on long journeys painful.

I saw the surgeon at the end of April and he is now talking about a hip replacement in September this year. He says it is inevitable and although I could wait I would be modifying my lifestyle to cope. I am a keen walker and already have reduced the type of walking I do and the length. I’m still swimming but very short sessions and I do spend some of the time walking in the water. Gardening has to be done in 30 minute sessions now. I’m self-employed and now 60, so gradually reducing my hours to start doing all of the things I love so it’s disappointing to be limiting how much I do.

In reading the threads on the forum I sense that my OA is possibly quite mild compared to others because I don’t have chronic pain all the time. At the moment the pain is managed with paracetamol and occasionally co-codamol, with 20mg amitriptyline at bedtime. The acute episodes are unpredictable and therefore difficult to manage. Stepping off a kerb and walking faster to cross the road is enough to cause pain to rip through my hip. Not a good time for it to happen.

I would be grateful for anyone who is able to interpret the scan report to comment on the severity of the OA and the option of surgery later this year. The insurer has already authorised it.

Can surgery be too soon? Is there an optimum time?

Thank you for reading this,

EmEm
 
Hi EmEm,
I'm no medical expert, but imo better just get it done and get on with life. The timing will probably never be really good, but waiting won't make things better either.
All the best
Susan


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I agree. My personal view is that this condition only gets worse, and it can surprise you just how fast it can gallop once it gets a hold. You will find that modifying your lifestyle will become an ongoing exercise. Mine was so much so that I ended up practically housebound within a surprisingly short timespan. What you really need is the opportunity to expand and enhance, not dimish, your lifestyle. You are a little younger than me and I believe that this is a benefit as you also sound fit and keen to regain your mobility. Delaying will mean that your whole body will potentially suffer, as referred pain causes all sorts of havoc in our muscles and other joints. The experts know what they're looking at so trust that view and grasp the opportunity to get things moving towards a much brighter future!
 
@EmEm Welcome to BoneSmart! I am not a medical expert either but have seen (and felt) enough of what you are describing as symptoms to give you input. My advice - if you want to maintain your active lifestyle get that hip replaced and get on with living.

You are already using medication to ease the pain. Starting to see limits in your activities. This will only get worse.

Keep in mind that OA of the hip can go from the stage you are seeing to horrid literally overnight. I had this happen with my left hip. One day I was putting up with pain but coping - the next I was in horrid pain. I waited too long and the joint finally collapsed. That THR and recovery was long and complicated as I had limped around far too long.

Fast forward and when my right hip started complaining I ran to the surgeon. Got the hip replaced within 5 months. The recovery was like night and day. A matter of weeks versus a year.

If you read in our recovery area you will see that overwhelmingly most members only regret is waiting too long for their THRs. Life is far too short for sitting on the sidelines.
 
Hi EmEm.
Like the other posters I agree that you have OA pain and 2 things are for certain.
The First is that the pain will most certainly get worse and sometimes at an alarmingly fast rate.
The second is it can all be sorted by hip replacement.
I had both hips replaced and am so glad I did.
My one regret is that I waited too long.
Joe......
 
Hello EmEm - glad you made it onto the forum at last!
Moderately severe osteoarthritic change, full-thickness articular cartilage loss and subchondral bone marrow oedema in the acetabulum
I sense that my OA is possibly quite mild compared to others
I don't agree. The report there tells me you have significant osteoarthritis and that you need a replacement.
The OS, who is highly-regarded both privately and in the NHS locally
I hear this oh so often and really, it means very little! But you could be in luck here. Why don't you tell me his name and hospital and I'll look him up on the National Joint Registry for you.
 
Thanks everyone for taking the time to reply, I really appreciate your combined wisdom. I had a total wrist fusion last year so have found it hard to cope with the thought of more surgery this year but I do understand it's not going to get better on its own. Where my wrist deteriorated over 15+ years, my hip has gone from nothing noticeable to needing surgery in under a year.

Now that I'm reassured that I am doing the right thing I am going to try to stop thinking about it and enjoy the summer (if we ever have one). I will be back nearer the time to read all the threads about getting ready for surgery.
 
You often hear that people say they regret having waited so long to replace a hip. I had to wait about 10 years due to lack of health insurance. At that point my OA was termed "severe." My degenerating hip contributed vastly to an overall decline in health and fitness, including weight gain that led to a whole host of associated problems. In 10 years I went from excellent athletic condition to a very low level of fitness and health from combined hip and shoulder arthritis. At your (our) age, I think it's possible to lose fitness very quickly and it's harder to get that fitness back later than it is for a younger person. So these are reasons for not waiting, if you know you're going to need the surgery at some point.

Regarding not being able to straighten your leg when you lie on your back: I had this also and couldn't stand up straight and had severe lower back pain. The cause was a tight hip flexor muscle. This is a muscle that runs from the top of the thigh and connects to your lower back. If you do a lot of sitting, this muscle can become permanently shortened. Then when you try to stand up it pulls painfully on the lower back. I was very lucky with my hip replacement: the pain in my lower back disappeared and I can stand up straight again.

I guess there is no exact definition of "moderate" vs "severe." My non-operated hip is classed as "moderate" but is not causing me any pain at all. Your "moderate" hip sounds much more painful than mine, and you're taking three prescription medications.

Perhaps the strongest argument for having the surgery now is that although it's major surgery, the recovery is fairly quick. You will be walking strong and pain free within 3 or 4 months, INSTEAD OF SPENDING THOSE MONTHS WITH WORSENING PAIN. That's a pretty good deal---2-3 days in the hospital, 10 days of little activity, and then less and less pain and more strength with each passing week. A small sacrifice compared to the huge benefit. I don't mean at all to minimize the seriousness of the surgery, but in the end I was very pleasantly surprised with how well my recovery went. I think this is why people say they wish they had done it sooner. They regret putting themselves through unnecessary pain.
 
Thank you PinkOrchid for your reply. The more I read on the forum, the more I realise that sooner is better than later. I have also realised that my health impacts my partner because whilst I'm restricting my activities it often causes him to do the same.

I also realise that I must pay more attention to which surgeon I choose and not rely on local opinion. The National Joint Registry was an eye-opener and I need to do more research.
 
Like all the others, I did not want to consider surgery so I plodded along. Then early this year I realized I was getting worse and I finally decided I needed to do something about it. I made my appt with an OS and the rest is history. I had my surgery 4/27 and if I had realized how much better I would feel, I'd have had it done sooner. I do longer have any pain walking and all that terrible arthritis stiffness is totally gone. Amazing! You definitely will not regret having the surgery. Just be sure to choose a surgeon who has done a lot of joint replacements as that is very important. I believe Josephine can help you with that if you have any questions as she, too, is in the U.K. And is quite familiar with many doctors there or she can research them for you. I wish you all the best.
 
Hello EmEm, Don't wait! Get it done. I had my left hip done three years ago. I lived with the problem not knowing since I was in my early twentys. The problem would come and go, but as I got older those come and goes got closer. All the time in between my primary Dr. Said it was sciatica after having X-rays on my back never xraying the hip , he said I had a bulging disk. When looking back in high school I remenered I had a football injury where I had hurt hip and it kept me from running.
I suffered a long time with it though, I always had a month or more where it didn't bother me at all.
Finally after having and MRI they found I had two cysts and a lot of arthritis in the joint of my left hip.
Anyway, the wait for surgery is the worse. Once you get it done you will be relieved of the pain and get on with the lifestyle you enjoy.
Now at the age of 60 have an appointment for my right hip June 6th. It is really starting to bother me. My left hip did bother me that bad for a long time and it did not get real bad quick like some have said it would. I am taking they're advice with my right hip because it seems to get worse by the day.
I hope all goes well for you.
Blessings, Vinnie
 
Get it done and move on with life! Poor diagnosis and I ended up waiting with two very bad hips and the hip flexors got very tight. Alignment was compromised which created a new set of problems. Noticed those who had the surgery sooner rather than later enjoyed good recoveries -less secondary issues to deal with post op which can slow down recovery. In my case these issues caused more pain than actual thr which for me, was minimal.
 
I was in denial just like you. Not able to put on socks or shoes because of range of motion issues you mentioned. Doctor recommended shots in hip, went to hospital to get injection which cost 2k out of pocket but changed my mind in the waiting room. Scheduled the surgery next day and told my boss,who said he thought it was a great idea. I was shocked, at his reaction. But that was the best thing to make me fix it for good. Surgery was a breeze , recovery took 2 weeks, and now I do a lot of walking and even practice soccer with my granddaughters. Just do. it.


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Thanks everyone for your replies. I have decided I will have it done this year and have an appointment at the end of June to discuss the choice of surgeon with my GP. The OS I have already seen is more known as a spinal surgeon (but does do hips) and I would like a hip specialist.
 
You're very wise to want a surgeon who specialises in hip replacements.
 
An update!

2 months on and I have a new surgeon at a different hospital. GP agreed to refer me to a hip specialist and I saw him at the end of June. He is much easier to talk to, less arrogant and does 170+ THR per year. I found out that the previous surgeon had done under 30 in the same time span. I'm scheduled for October 4th to fit in with my work commitments because I am self-employed.

I am worried now about after the op and how I will manage crutches, cane etc. I had a left total wrist fusion and will be having a right THR. I had a very bad day earlier this week with hip pain and tried walking with a cane in my left hand which was almost impossible. My hand is not strong and there is still some pain because the fusion couldn't eradicate all the arthritis.

Has anyone had similar problems and how did you cope with a walking aid?
 
@EmEm congratulations on your date! I also am self-employed, and have scheduled my hips exactly as you've done :yes: I'm a musician, with permanently compromised hands and wrists from playing, and from a couple of spectacular wrist sprains from falling on my face down stairs....so the very thought of crutches makes my wrists/hands very unhappy. I was required to use first a rolling walker, then cane, for both my replacements. I was completely amazed after my first hip (at your current age) to find that the walker was really only for balance and moral support! I'd practised walking in it pre-op, so was able to walk head up, steady walking, immediately. This only works if one is comfortable weight bearing, which I have been for both hips. Perhaps your surgeon would allow the walker?
And as to cane-- the same. Weight bearing on either wrist is highly uncomfortable. The only way I can put weight on my wrists is to make a fist and place the "ring-wearing" portion of it on my supporting surface. That doesn't work with a cane. So I tip along with my cane, using it to keep my gait honest, or as a little confidence-maker. Here's hoping you'll have good strength and balance from the beginning:flwrysmile::flwrysmile:
 
@EmEm can you use elbow crutches? The pressure on your hands and wrists is not the same as it is when you are using a cane.
 
Thank you for your replies. I had to Google elbow crutches but think I could manage them. I can manage a cane in my right hand but that's the same side as my hip so not sure if that works. I have a physio assessment in September so hopefully will get some advice.

zauberflöte do you still play despite your hands/wrists? That must be painful to do for any length of time. Do you get elbow pain too? I'm hoping mine is because my wrist aches but wonder if my elbow has it's own problems!

I just added my surgery date and became an October Feisty!
 
I have a physio assessment in September so hopefully will get some advice.
Yes, a physio can assess you and provide you with elbow crutches. Do let us know how it goes.
 

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