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TKR 7.5 years later.....

Mutley

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Feb 5, 2013
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Hi!
My last post was 3rd December 2013 to ‘celebrate’ my 1 year TKR. Well I guess it would be fair to say my recovery hasn’t been the best. Continuous problems with the knee which has recently seen me diagnosed with CRPS (Complex regional pain syndrome) Basically been told that nothing can be done but maybe some sort of counselling to help me learn to live with the pain ☹ Still waiting for an appointment since last seeing the head physio back in January. An x ray didn’t show up any loosening of the replaced knee & typically when they gave it a good old yank it wasn't painful. However nighttimes are horrendous. Some nights I get very little sleep due to the pain in my knee & I'm back to using a pillow between my legs as I can’t bear the knees touching. This is how it was prior to having the TKR Even have to wear my old knee brace some days if the pain is too bad. Just wondered if anyone had any opinions or experienced something similar? Can’t believe that at the age of 55 I have to put up with this for the rest of my life...
 

Sara61

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@Mutley sorry to hear you are still having so much pain, could you not get a 2nd opinion from a different doctor and run a series of new tests to see why your knee is troubling you so much?
Hopefully someone can advise you, as 55 is young to have to live with chronic pain :console2:
 

Pumpkln

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Mutley,
Welcome back to BoneSmart, sorry to hear of the challenges you are having with your knee.
CRPS is a difficult diagnosis for the patient and health care providers, you can be helped, there is hope.
Ask to be seen by a pain neuroscience specialist for your CRPS.
We have had other members with CRPS, but I cannot think of anyone on the forum currently.

Here are some pain neuroscience resources for chronic pain.
Painreframed podcasts, on iTunes
Retrainpain . org (basic education material)
Curable app (fee based)
 

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