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Knee Infection 4th TKR: possible failure again

swoopchick

new member
Joined
Jun 11, 2019
Messages
1
Age
50
Location
QLD
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Female
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Australia Australia
Hi all brief history here.

2000 first TKR after multiple reconstructive surgeries.
2001 second TKR after fall and damaged prosthetic
June 2018 can't live with the pain any longer and have 3rd TKR.
July 2018 3rd TKR removed due to fungal infection, first set of spacers inserted.
November 2018 second set of spacers inserted again due to infection
February 27 2019 4th TKR inserted with long rod instead of normal prosthetic due to the fact that a large hole was torn in femur while scraping cement out from the third TKR.
Now I also have titanium plate as femur was also fractured while removing 3rd component.

To date infection markers are not terribly high but they are elevated, knee is hot to the touch and swells with activity. Pain is worse than when this all started last year. Waiting 6 more weeks to see what we are going to do next. Amputation is starting to sound good.
 

Jockette

FORUM ADVISOR
Forum Advisor
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15,809
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Oh I’m so sorry you’ve been through so much.

I hope you were somewhat jesting about amputation, from what I understand it’s not the end of problems, sometimes it just trades for new ones. But I can understand you thinking of it. :console2:

I am going to tag @Josephine,
our forum administrator and nurse director, to come and talk with you about your infections and revisions.

I will leave you our Recovery Guidelines. Each article is short but very informative. Following these guidelines will help you have a less painful recovery. I sure hope this next one will be the last one you need.

Knee Recovery: The Guidelines
1. Don’t worry: Your body will heal all by itself. Relax, let it, don't try and hurry it, don’t worry about any symptoms now, they are almost certainly temporary
2. Control discomfort:
rest
elevate
ice
take your pain meds by prescription schedule (not when pain starts!)
don't overwork.
3. Do what you want to do BUT
a. If it hurts, don't do it and don't allow anyone - especially a physical therapist - to do it to you
b. If your leg swells more or gets stiffer in the 24 hours after doing it, don't do it again.​
4. PT or exercise can be useful BUT take note of these
5. At week 4 and after you should follow this
6. Access to these pages on the website

The Recovery articles:
The importance of managing pain after a TKR and the pain chart
Swollen and stiff knee: what causes it?

Energy drain for TKRs

Elevation is the key

Ice to control pain and swelling

Heel slides and how to do them properly

Chart representation of TKR recovery

Healing: how long does it take?

Post op blues is a reality - be prepared for it
Sleep deprivation is pretty much inevitable - but what causes it?

There are also some cautionary articles here
Myth busting: no pain, no gain
Myth busting: the "window of opportunity" in TKR
Myth busting: on getting addicted to pain meds

We try to keep the forum a positive and safe place for our members to talk about their questions or concerns and to report successes with their joint replacement surgery.

While members may create as many threads as they like in the majority of BoneSmart’s forums, we ask that each member have only One Recovery Thread. This policy makes it easier to go back and review the member’s history before providing advice, so please post any updates or questions you have right here in this thread.
 

Tmgrl3

junior member
Joined
Jun 7, 2019
Messages
68
Gender
Female
Country
United States United States
Wow! I wish I could say something encouraging or give you input but felt I just wanted to say I am so so sorry. I can’t even imagine what this is doing to you physically, mentally and emotionally. I just had a bilateral done and am 11 weeks out and some nerve exacerbation from L5-S1 making radiculopathy and neuropathy worse in feet and ankles. You have been through so much. Keep us posted as to what happens and let’s hope there is a fix this time.
 

Josephine

NURSE DIRECTOR EMERITUS
Nurse Director
Joined
Jun 8, 2007
Messages
84,940
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78
Location
The North
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Female
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United Kingdom United Kingdom
Oh my giddy aunt! What a dreadful story for you to have lived through! I'll certainly see what I can offer in the way of information and/or advice.

But before we begin, would you be dear and provide us with all the dates of your surgeries which I calculate is about 6 or maybe 7 procedures. We need the full dates.
 

Celle

MODERATOR
Moderator
Joined
Nov 19, 2011
Messages
36,085
Location
New Zealand
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Female
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New Zealand New Zealand
Oh my, @swoopchick , you've certainly been through the mill with this knee. :console2:
Which knee is it, by the way?

We've had several people with infected knee joints and, lengthy as the treatment is, they have all eventually come through it with positive results. If you'd like to read some of their stories, go to this link:
https://bonesmart.org/forum/view/knee-replacement-recovery-area.9/?prefix_id=33
You can also get there by clicking on any of the red prefixes that say "Knee Infection"

Don't even think about amputation. That is really a very last resort and it should only be done to save your life. My son had an above-knee amputation in his early thirties. While he has handled it well and he now walks without even a stick, it hasn't all been plain sailing. He still has phantom pains and still feels his missing foot. He can't walk far without his prosthesis causing blisters on his stump and hot days are most uncomfortable for him.

Do you have an Infectious Disease specialist on the team looking after you? If you don't, it would be a good idea to ask to have one involved.

I will start your signature but, as Josephine said, we do need the full dates of your surgeries, if you can remember them.
 

tabbykit

member
Joined
Apr 19, 2019
Messages
141
Age
63
Location
Scotland
Gender
Female
Country
United Kingdom United Kingdom
Oh dear, sorry to hear you have had such a dreadful time. Hopefully you you get lots of good advice and help on here.
 

TimeBuster

member
Joined
Apr 30, 2019
Messages
103
Age
64
Location
New Jersey
Gender
Male
Country
United States United States
I have no words of wisdom. I just want you to know to keep fighting never give up the answers are out there.
 

possum65

junior member
Joined
Jan 14, 2019
Messages
84
Age
66
Gender
Female
Country
New Zealand New Zealand
What a miserable time you have/are experiencing with your knee. I really feel for you. Am I reading you right, all this is on the same knee?
 

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