Hey there, I'd like to start by apologizing for my english and ranting, as it is hard for me to keep sumarized in another language while getting to the point.
-- Context - -
Thanks to this forum place, things at home went REAAAALLY slowly but better, I kept following the advice and even with extreme pain, I could see, very little by little I could start moving my leg... Then get up alone... Then use a bathroom alone and even sit on the couch and feed my cats. I was tired but hopeful, finally walking with aids and being more me again.
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Until almost 2 weeks ago. I had follow up appointment day 20th. The days before I had VERY sharp pain whenever sitting on the little pelvic bone / sit bone inside the buttocks of my THR. It was also getting very hard and like a ball inside. I tried telling the doctor but he did not listen to 1 word me or my mother tried to say. After being ignored for the full 3 minutes the consult was, I asked if he listened and he babled "yes, all pain is normal, now go have a nurse do your bandage" ( even after I tried telling I removed all thr stapples on the 15th and the scar looked ok...) after waiting 2 hours for nurse, she insulted my mother and asked why we were there if there was no bandage. We came home dissapointed n tired.
Ever since it got worse, worse, WORSE. I can't sit at all, I barely can walk or move, barely can lay in bed. The pain is non stop and excrutiating, also spread. Now the entire lower buttocks is super hard and so painful even lying elevated hurts. The hard ball inside and around the bone kept growing towards the inwards part to genitals, so now tranverse perineal muscle is all swollen and stretched and everything connecting to it on that side (now pee and bowel hurts much, even if I drink good water and stool softner) . All I do all day is lie in bed trying to cope with it, no more.
A friend nurse came and tried changing my meds: I did before Benuron (paracetamol) and Naproxen every 12 hours... Now it is, interscaling one each time, Brufen and a muscle relaxer Adalgur every 8 hours. It isnt working much better.
.
.
What could it be, how to help it? I searched here a lot and google but what I find isn't t it (not bursitis, not sciatica, not piriform, not coccix).
Using my little savings tomorrow to go to a doctor in PRIVATE hospital but I am scared he won't help since they never do nor believe me, in any of my diseases until it is too late and too much damage is done already. Think I am going insane so I decided to join for help too :c
-- Context - -
I'm 27 years old and had my first THR May the 1st, following extreme avascular necrosis on my body due to leukemia treatment as a child.
After years of being mal diagnosed, told to be making it up, fratures, dislodging and the sorts, when finally someone diagnosed had lost over 70% mobility just on my left leg. The doctor said that since I was only 20, he didnt want to operate and would rather wait until i was 35-40 or until I could no longer walk. After more time things got worse, had to use walking aid and due to very disabilitating condition, I asked for a new appointment but they sent me to a new doctor (public hospital). He was different and said I deserved a normal life and there was nothing stoping me and that I should start by replacing one of the hips, later the other. He promised me something I dreamed all my life so I accepted, specially when he said hed be there throughout ....
Tbh, I regret it a lot. I was just called on the mobile one day and said to go to the hospital next day, get checked for covid and then surgery. They left me alone in a room all day, went to get me at almost 1am and told me Id have surgery at 7am. No one ever talked to me of risks, of what would happen next in recovery, limitations, etc. I was scared and kept in the dark always.
The first 3 days were hell and I wished to die. I also did many mistakes like swing my hip all in, join my legs, etc. Since no one talked to me, when I got stronger I managed to use the net on my phone and found this place and tried following all you said, like ask for a pillow for my legs, keep apart, so on.
The first time I saw a doctor it was a mumbling apprentice at day 4, who wanted to discharge me even though I had never left my bed, had sit nor have my drain removed. After correcting her on my condition, she changed her mind and finally told me never in my life to bend over 90 degrees or open hips too much. So they forced me up a few times that day, collapsed, vomited, passed out... Next day 3 doctors came, none my doctor nor surgery doctors, refused to talk except to say I needed to go home. I pleeded with them I could not even sit on a chair much less travel home alone, as I had no one available... They said they'd give me one more day only. 6th day arrives, i finally see my consult doctor. He tries to leave the room without talking to me, I try asking if he did my surgery and he sharply says no and leaves. A kind nurse comes and says she will teach me to use the big canes (dont know word) and that I will go home in a few hours.
After years of being mal diagnosed, told to be making it up, fratures, dislodging and the sorts, when finally someone diagnosed had lost over 70% mobility just on my left leg. The doctor said that since I was only 20, he didnt want to operate and would rather wait until i was 35-40 or until I could no longer walk. After more time things got worse, had to use walking aid and due to very disabilitating condition, I asked for a new appointment but they sent me to a new doctor (public hospital). He was different and said I deserved a normal life and there was nothing stoping me and that I should start by replacing one of the hips, later the other. He promised me something I dreamed all my life so I accepted, specially when he said hed be there throughout ....
Tbh, I regret it a lot. I was just called on the mobile one day and said to go to the hospital next day, get checked for covid and then surgery. They left me alone in a room all day, went to get me at almost 1am and told me Id have surgery at 7am. No one ever talked to me of risks, of what would happen next in recovery, limitations, etc. I was scared and kept in the dark always.
The first 3 days were hell and I wished to die. I also did many mistakes like swing my hip all in, join my legs, etc. Since no one talked to me, when I got stronger I managed to use the net on my phone and found this place and tried following all you said, like ask for a pillow for my legs, keep apart, so on.
The first time I saw a doctor it was a mumbling apprentice at day 4, who wanted to discharge me even though I had never left my bed, had sit nor have my drain removed. After correcting her on my condition, she changed her mind and finally told me never in my life to bend over 90 degrees or open hips too much. So they forced me up a few times that day, collapsed, vomited, passed out... Next day 3 doctors came, none my doctor nor surgery doctors, refused to talk except to say I needed to go home. I pleeded with them I could not even sit on a chair much less travel home alone, as I had no one available... They said they'd give me one more day only. 6th day arrives, i finally see my consult doctor. He tries to leave the room without talking to me, I try asking if he did my surgery and he sharply says no and leaves. A kind nurse comes and says she will teach me to use the big canes (dont know word) and that I will go home in a few hours.
Thanks to this forum place, things at home went REAAAALLY slowly but better, I kept following the advice and even with extreme pain, I could see, very little by little I could start moving my leg... Then get up alone... Then use a bathroom alone and even sit on the couch and feed my cats. I was tired but hopeful, finally walking with aids and being more me again.
.
.
.
Until almost 2 weeks ago. I had follow up appointment day 20th. The days before I had VERY sharp pain whenever sitting on the little pelvic bone / sit bone inside the buttocks of my THR. It was also getting very hard and like a ball inside. I tried telling the doctor but he did not listen to 1 word me or my mother tried to say. After being ignored for the full 3 minutes the consult was, I asked if he listened and he babled "yes, all pain is normal, now go have a nurse do your bandage" ( even after I tried telling I removed all thr stapples on the 15th and the scar looked ok...) after waiting 2 hours for nurse, she insulted my mother and asked why we were there if there was no bandage. We came home dissapointed n tired.
Ever since it got worse, worse, WORSE. I can't sit at all, I barely can walk or move, barely can lay in bed. The pain is non stop and excrutiating, also spread. Now the entire lower buttocks is super hard and so painful even lying elevated hurts. The hard ball inside and around the bone kept growing towards the inwards part to genitals, so now tranverse perineal muscle is all swollen and stretched and everything connecting to it on that side (now pee and bowel hurts much, even if I drink good water and stool softner) . All I do all day is lie in bed trying to cope with it, no more.
A friend nurse came and tried changing my meds: I did before Benuron (paracetamol) and Naproxen every 12 hours... Now it is, interscaling one each time, Brufen and a muscle relaxer Adalgur every 8 hours. It isnt working much better.
.
.
What could it be, how to help it? I searched here a lot and google but what I find isn't t it (not bursitis, not sciatica, not piriform, not coccix).
Using my little savings tomorrow to go to a doctor in PRIVATE hospital but I am scared he won't help since they never do nor believe me, in any of my diseases until it is too late and too much damage is done already. Think I am going insane so I decided to join for help too :c
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