BoneSmart® Hip / Knee Replacement Forum
Joint Replacement Patient Advocacy
and Online Community
  1. Announcing BoneSmart's NEW Joint Surgeon Locator tool

    We are pleased to now offer a tool to help you find just the right surgeon for your needs.

    Read more about this in this announcement:

    Dismiss Notice

Joint Replacement Patient Forum

    Hip Replacement with Congenital Lymphedema, Dec 17, 2017
  1. Josephine

    maliedeh, welcome to BoneSmart!

    I checked out primary congenital lymphedema and have discovered it to be on the NORD (National Organisation list for Rare Diseases) which means that you are most unlikely to find a hip surgeon experienced in congenital lymphedema. I think the best kind of surgeon you could use is one who specialises in sarcoma cases.

    Looks like a rather nasty condition. I wish you success in your enterprise. Do let us know how you get on.

Close X