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Knee & Hip Replacement Patient Forum

    #primarycongenitallymphedema
    Hip Replacement with Congenital Lymphedema, Dec 17, 2017
  1. Josephine

    maliedeh, welcome to BoneSmart!

    I checked out primary congenital lymphedema and have discovered it to be on the NORD (National Organisation list for Rare Diseases) which means that you are most unlikely to find a hip surgeon experienced in congenital lymphedema. I think the best kind of surgeon you could use is one who specialises in sarcoma cases.

    Looks like a rather nasty condition. I wish you success in your enterprise. Do let us know how you get on.

    #primarycongenitallymphedema
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