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    #heterotopicossification
    Continuing thigh pain from failed osteointegration?<, Jul 9, 2018
  1. TerryB_TX

    Thank you for your kind words and prayers @Layla . I think I had to whine just a little bit to get it out of my system. Now I'm embarrassed by my whining as I've read through the threads of others who have endured so much more with such courage, grace, and perseverance. They give me inspiration and hope. I've seen how you have supported them all along the way. You're a kind and caring person, grateful to have you on this forum.

    #heterotopicossification
  2. Looks like maybe a revision will be needed..., Jun 30, 2018
  3. chalcedonian1

    Yes @Jaycey it is my body, my recovery. I am going with my gut. I'm not saying that NSAIDs are the cause of my problem, there can be no way of knowing, I have no memory of whether I did or did not take them during that first 3 month period after surgery.

    @Margie10 Thank you for your words of encouragement and your advice, each message I get on this site makes me calmer, at least for a bit! And I am always sorry to hear when someone else has had a failure with their implant.

    @Josephine THANK YOU SO MUCH for your careful response. I will find out if the surgeon is giving me an NSAID to avoid Heterotopic Ossification, but when I called his office, I was told it was because "it is an anti-inflammatory", which really didn't tell me much, did it? Maybe I will learn more on Monday.

    And how amazing is it that you got that information removed from that advert! Yes, I saw this was absolutely done in Australia when I was researching NSAIDs the other day.

    I did understand some of the side effects and possible complications from NSAIDs, and I do get my blood tested every two months if/when I am on them every day (e.g., recently I have suffered with a torn rotator cuff and bursitis in my shoulder, which can't be addressed by surgery now, so was given a steroid shot and prescribed Meloxicam for just two months). But because I have never suffered any serious or other side effects of which I am aware from NSAIDs, I have not researched much about them re: inhibiting bone growth until now, until I read your comment on
    @TerryB_TX 's thread!!!!!

    So far as reading the label on the bottle, I went on the Alleve website; regarding surgery, its FAQs only state "Do not use right before or after heart surgery. For other surgeries, discuss with your doctor to get the answer that's right for your needs. Only he or she is best qualified to answer this question." Well if one's surgeon thinks the research on NSAIDs is inconclusive but ends up on the positive side more than the negative, and therefore prescribes one, as mine has, then I just feel like I am a guinea pig because every article I have read so far on this topic conflicts with another, and is simply inconclusive. On balance, considering everything, I will take my own route after I find out WHY I have been prescribed Celebrex. If there is some brilliant reason none of us has thought of I will report here. Otherwise, I will remind everyone just how much they have to be their own advocate, at least in the US health care system, most especially on this topic and with respect to Physical Therapy, which seems to be viewed here as just about the first step for any physical musculo-skeletal problem, even for people who are bone on bone, and often with a no- pain no-gain philosophy.:banghead:

    So aside from this NSAID issue, I feel as ready for Tuesday as I ever will, and appreciate all the good thoughts and wishes, please keep them coming, they are very helpful and it does reassure me to hear from others who have walked before me.

    #heterotopicossification
  4. LTHR 6/11/18 is in the books., Jun 16, 2018
  5. Sbrummer

    Well, I finally got my hip replaced Monday. It’s been such a long week. I’ve had good hours and bad hours. It hasn’t been long enough to say good days and bad days. There have definitely been a few positives so far. My surgeon told me that my femoral head was softer than a sponge, which makes me glad I had this done. I can also stand on my left leg and that pain I was experiencing is totally gone. Now, that doesn’t mean I don’t have any pain because I sure as hell do. It’s just different kind of pain.

    The day after my surgery was pretty rough. Apparently, I bled a lot during surgery. I had to get 2 units of blood to try and make up for it. And then, since I can’t take any type of anti inflammatories, I also had to have a mapping CT and a radiation treatment to prevent any further heterotopic ossification. Some genius decided that I should have to change beds 6 times during transport to radiology and back for all of that. I don’t remember much more than hearing myself scream and then begging for medicine.

    I’ve had the most difficult time regulating my temperature. I keep spiking fevers over 101.5, complete with chills and chattering teeth. A little while later, I’m taking off every blanket and stitch of clothing because I’m drenched in sweat. They checked me for a UTI and did a blood culture, but both came back just fine. I still don’t feel well and Tylenol doesn’t stop the fevers.

    This whole week, I’ve felt like I’m in a different dimension. I know the pain has caused more than one out of body experience. Please don’t misunderstand. I knew I’d have pain. I watched more than one uncensored video of a LTHR. I just about lost it when some doctor I didn’t even know come in and tell me that everyone else experiences mild pain for three days, so I just need to get over myself. I told him I’m not everyone else and he could get out.

    I know this has got to get better. I just need to get my temperature stable and get my pain to a manageable level.

    #heterotopicossification
  6. Heterotopic Ossification after Total Hip Replacement, Apr 30, 2018
  7. CalciumHip

    April 22, 2018 - My wife's problem with Heterotopic Ossification in her right hip after she fell and broker her hip and had a total hip replacement in Sept 2016 continues. However, after her last bone scan (full body) the doctor reports that the calcium has stopped growing and now she can have surgery to remove the calcium tumor and the bone growth on her right femur. She is scheduled for surgery on May 22 at Emory Hospital in Midtown Atlanta. The doctor is Dr. Shervin Oskouei, Musculoskeletal Oncology, Emory Orthopaedics Center, Atlanta, GA (one of two doctors I could find in Georgia who is familiar and can operate on people with HO. To hopefully prevent the return of the HO he will give her a treatment with radiation. I will let you know how this turns out. Prays would be appreciated. Thanks.

    #heterotopicossification
  8. Upcoming Revision, and Scared to Death, Apr 30, 2018
  9. ucsbgal1971

    I have had 11 or 12 surgeries in my life due to various medical problems. As a result, I have had numerous cat scans X-rays, radiation treatment. Radiation is apparently accumulative and my family physician warned me that I have had a lot more exposure than the average person. He recommended that I not have any more exposure unless it was absolutely necessary due to the cancer risk. Apparently, my os was surprised to find so much scar tissue as it didn't show up on the studies he had. My surgery took longer than expected due to that complication. The radiation treatment was to prevent scar tissue from forming again but there was a problem with the scheduling and my surgery was supposed to be scheduled within two hours after the radiation treatment but it wasn't scheduled until 7 hours later. I don't know if the scheduling problem minimized the affect of the treatment and am upset that I exposed myself to cancer with this treatment for nothing.

    #heterotopicossification
  10. Tony2hips Recovery, Apr 17, 2018
  11. tony2hips

    Thank you for that Layla. Having read through it I think I need to think hard before considering the surgery as it sounds as if recovery could be longer than the from the THA or Revision with a high risk of infection or possibility of it reforming. I really thought while laying in recovery from the simultaneous THA two years ago that my problems were over, not just starting

    #heterotopicossification
  12. Here I go again!<<., Apr 14, 2018
  13. Jordon6

    So in my latest notes from my surgeon diagnosed me with ankylosis not arthrofibrosis. He used the term scar tissue with me in the visit so I assumed it was arthrofibrosis. I googled it and they sound very similar.

    @Josephine help me determine what this means and what’s my next step. I’m in pain and have little quality of life.

    #heterotopicossification
  14. Schaad's Recovery thread, Feb 28, 2018
  15. schaad1708

    Had surgery on 8/2/2016 to remove bone growth in the bursa of both knees (Heterotopic Ossification) . Fell twice just after the procedure, the second time I broke open the incision on my right knee. .This required 2 surgeries to close the wound then to reattach the patellar tendon. Then on 4/26/2017, I had a right total knee revision. I fell again (in the surgeons waiting room) on 10/27/2017. Surgeon said left knee was unstable and recommended that I have total knee revision. I was subsequently told that the surgeon’s practice no longer accepted my insurance. I am currently searching for a surgeon who takes my Obamacare Insurance and who does revisions.



    Sent from my iPad using Tapatalk

    #heterotopicossification
  16. Makoplasty Recovery<, Dec 20, 2017
  17. CalciumHip

    My wife has Heterotopic Ossification in her right hip. This developed after she feel and broke her hip and had to have a total hip replication (9/4/2016). Her story so far is outlined under the user name of CalciumHip. We are right now waiting until April 2018 when she can again have a full body scan to see if the calcium has stop developing.

    I just had a heart attack and had to have open heart surgery with a triple bye-pass. However, the surgery went well and I am now recovering well. My wife is doing better but she still is in a lot of pain and she still falls. We will have the operation with the doctor we found at Emory Orthopedics Center in Atlanta hopefully next Spring. The doctor's name is Dr. Shervin Oskouei, Oncology.

    #heterotopicossification
  18. Back to square one?<, Nov 16, 2017
  19. emmysmom

    So my prescription is for 2 grams of Diclofenac 1% 4 Times a day.

    I read all the articles on the site about Heterotopic Ossification (how much I understood may be another story) and it seems to me that the topical NSAIDS might be a good idea.

    Opinions?

    #heterotopicossification
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