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    CRPS, Anyone else burning and pain post OP TSR with blisters?, Mar 31, 2019
  1. Pumpkln

    We have members who have had an allergic reactions to the tapes and adhesives used in surgery, with a similar response. Have you been tested for other allergies? Has a metal allergy been ruled out?

    CRPS is a complex diagnosis, it can begin with a simple cut on your finger, toe etc, up to the worst injuries possible.
    It is a reaction of your nervous system to injury.

    The curable app might be a great resource for you, they have a free trial.

    Click on the this hash tag and you will be taken to posts about #CRPS.
  2. CRPS, Anyone else burning and pain post OP TSR with blisters?, Mar 30, 2019
  3. Jamie

    @DeannaTA .... you'll notice that Jo gave some information about how to treat a severe blistering like you had with your surgery 6 years ago. That information, while not something you need at this point, may be helpful for others who may have a similar situation.

    As for dealing with your CRPS, Pumpkln's suggestions are right on target. If you haven't recruited a whole team of medical experts to help you deal with this condition, that would be a good step forward. As I mentioned, CRPS can be difficult to deal with. Many times there is a lot of trial and error to determine treatments that help and give you a more functioning limb.

    We have had members who had this condition. In fact, we have made #CRPS one of our BoneSmart hashtags. So, you can search for posts dealing with it by searching for the hashtag or just by clicking on the link here in my post. When you click, it will bring up all the posts containing that hashtag.

    I might suggest that you alter the title of your thread to reflect the CRPS rather than the rash that was years ago. Some of our members search the titles for topics they are interested in and you may get more responses this way. If you'd like to make that change, just post what you'd like the new title to be and one of the staff members will get it changed for you.

    I know all this must be terribly frustrating for you. You are always welcome to post specific questions or concerns here. We'll try to get you as much information as we can to help. And, even if you just want to vent a bit, we're here to listen as well. You are part of the BoneSmart family now and we care about you.
  4. CRPS, Anyone else burning and pain post OP TSR with blisters?, Mar 29, 2019
  5. Pumpkln

    You may want to put together a team of people to address your #CRPS, unfortunately it is not as simple as finding a pain clinic.
    Find a counselors specializing in pain, you will probably have to call and ask about their advanced training in treating CRPS.
    Find a PT who has taken classes about pain science from the International Spine and Pain Institute, ideally they should be certified. There is a directory of practitioners on their website.
    Find a MD to help with medications and non invasive treatment.

    They can as a team help you understand how your nervous system and brain work together, and how CRPS develops after injury/surgery.

    You may want to take a look at the Curable app for chronic pain, they also address CRPS. You can also find them on the web at curable health.
  6. CRPS, Anyone else burning and pain post OP TSR with blisters?, Mar 29, 2019
  7. Jamie

    Oh horrible. I'm so sorry this happened to you. #CRPS can be a rather difficult condition to treat, as I'm sure you know by now. What doctors are you seeing for this condition and what treatments are you on or have you tried?
  8. CRPS, Feb 28, 2019
  9. JennyI

    Haven't been on the Forum since 2011 when I had a right TKR in the April of that year. I have had severe shooting and stabbing nerve pain in and around that knee ever since. Four years later I had a bad cut on my right ankle which just missed the tendons and which required 15 stitches. Nerve damage? Not sure.

    Two and a half years ago I had a right THR followed by continuing numbness and nerve pain. Had a minimally invasive laminectomy last year after 57 years of back problems, followed three days later by a further spine surgery due to a hematoma that spread up and down 4 vertebrae from the surgery site. My quality of life has not been great. I go to a Pain Management Clinic at our local hospital. They now think I have CRPS (Chronic Regional Pain Syndrome).

    My question is - has anybody had continuing nerve pain from their TKR's that has developed into this condition? If this is not the correct forum Josephine, please let me know.

  10. Unable to balance on operated leg., Feb 20, 2019
  11. Mojo333

    Fudge!:wave: and :wave: again!
    So glad you popped in for an update.
    I certainly have thought of you and am glad you are still fighting the good fight...
    I'm glad your surgeon was respectful and you felt like you were heard so you can see what options are available to you regarding the crps.
    I'm sure you have sought out all you can on the subject but if you hit in this hashtag it brings you to some if our experiences with it on the forum. #crps

    Thanks for encouraging those still struggling! You will find a way, I know...tough lady you are!
  12. Indieknee trying to recover, Dec 4, 2018
  13. Celle

    We do have this article in the BoneSmart library , too.
    Complex Regional Pain Syndrome (CRPS or RSD)

    Also, if you go here - #crps - it will bring up a series of posts about CRPS.
  14. Indieknee trying to recover, Dec 4, 2018
  15. indieknee

    My OS has suggested that I may have Complex Regional Pain Syndrome. This is partly because I have had more pain than I should have at various stage in my recovery.
    Of course I’ve had to research this myself! Here are a few websites that may be useful or of interest to others even if they don’t have this syndrome. I think it’s something that should have ‘raised awareness’ but please don’t let it worry you - it is quite rare.

    About CRPS

    Potential CRPS cure U.K.

    American RSD hope

    CRPS resources from CRPS UK

  16. Indieknee trying to recover, Sep 13, 2018
  17. indieknee

    Celle and susieshoes - as always thanks for your wise words - I am much comforted :console2:
    Not sure whether my son would welcome being called sweet (even though he can be):blush:
    More news: my surgeons pa phoned and asked if I could go and see him this afternoon. We have just arrived back. He found no infection, thank goodness, but said I had something called Complex Regional Pain Syndrome and has prescribed Gabapentin. I’m seeing him again in 2 weeks. So we’ll see what happens.

  18. DVT while in hospital., May 8, 2018
  19. lupep

    I had a LTKR June 10, 2015 at Swedish Orthopedic Institute in Seattle. I fell on a city sidewalk March 1, 2010 and after various treatments, a TKR was the only thing left to do to resolve constant pain.

    I had symptoms of intense pain and was no longer able to put my heel down about 28 hrs post TKR. The nurses said to take more pain medication. No one looked at my leg or questioned the change in my condition. I was medicated so heavily that I was picking spiders off of my sheets (nurse laughed) and talking with my deceased mother.

    Dr still wanted to release me the next day even though I told him I was in too much pain. It was the PT assistant who came in for a last session before discharge who thought I may have a clot. Sure enough, "acute near occlusive left popliteal vein DVT".

    I was started on medication and stayed another night. My leg was so bruised and swollen that I had gained 10 pounds while in the hospital. After 3 months of Coumadin, thigh high compression stocking, and countless appointments to PT, etc, I am left with complex regional pain syndrome.

    I went to the local university medical system for another opinion because my surgeon said "we're not even sure you ever had a clot." The university Dr said I had excessive bleeding the OR and the swelling compressed my vein. He also said he wouldn't have done a TKR for my knee which was damaged from a sidewalk fall. University Dr referred me to their pain clinic. The pain clinic ordered a triple phase bone scan and found increased metabolic activity in my operated leg, this is 2½ years after the surgery.

    Several treatments were offered, Duloxetine, PT, TENS, a nerve block, nerve ablation, and high IV doses of a bisphosphonates. I have continued pain, nerve sensations, some swelling. I try to manage with ice, heat, exercise, and sometimes sleeping medication.

    Has anyone else had experience with this? I want to talk with the hospital risk management regarding their poor postoperative care and would like some guidance before I talk with them.

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