tbatt9
junior member
I've posted previously about our son Matthew and his bilateral hip problems. After much agonizing we've decided to proceed with hip replacements. His issues are different than what most experience in that his pain isn't the typical bone on bone arthritic pain but appears to be from deep bone pain due to necrotic bone inside his femoral heads and due to the abnormal anatomy which has both sockets flat and shallow. He's basically been having a slow motion collapse of his femoral heads due to the dead bone inside them. Instead of round balls his look more flat like mushrooms.
Lifestyle wise he has become increasingly sedentary over the last year since his diagnosis. Basically he can't stand for very long without needing to sit or lean on something. He can still do most things but it's harder and he pays the price later.
The hardest thing is to know if we are jumping the gun by electing to do this now on a kid so young. The surgeon basically says its up to us to decide if the pain is effecting him enough to merit it. But some days when he's just sitting around he has little to no pain. But then again that's the problem. A 15 year old shouldn't feel like he can't get off the couch without pain. But by going through this now his life is forever changed and he will wind up needing revisions in future as he wears these out. But his quality of life this year has really gone down hill and is unlikely to improve without this.
So that's his story. We are sick with worry about it but have decided at least for now to go through with it in couple days.
#teenagehipreplacement
Sent from my iPhone using BoneSmart Forum
Lifestyle wise he has become increasingly sedentary over the last year since his diagnosis. Basically he can't stand for very long without needing to sit or lean on something. He can still do most things but it's harder and he pays the price later.
The hardest thing is to know if we are jumping the gun by electing to do this now on a kid so young. The surgeon basically says its up to us to decide if the pain is effecting him enough to merit it. But some days when he's just sitting around he has little to no pain. But then again that's the problem. A 15 year old shouldn't feel like he can't get off the couch without pain. But by going through this now his life is forever changed and he will wind up needing revisions in future as he wears these out. But his quality of life this year has really gone down hill and is unlikely to improve without this.
So that's his story. We are sick with worry about it but have decided at least for now to go through with it in couple days.
#teenagehipreplacement
Sent from my iPhone using BoneSmart Forum
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