Casilliman
new member
- Joined
- Apr 7, 2013
- Messages
- 9
- Age
- 57
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- Female
Hello board,
I am brand new here, but a hip replacement veteran with a new problem. Particle Disease. I need advice if anyone has some.
Quick Hx of my hip and I ...
I was Dx with avascular necrosis in 2001, underwent a core decompression in August of that year, followed by a THR in Feb 2002 after a spontaneous fracture. That replacement lasted 10 years and one week. I never experienced 'pain relief' in those ten years, and my first OS said it was bursitis, that my xays always looked 'fine'. So ... after a decade of relentless pain, I went for a second opinion, and the new OS did more radiology studies and dx was made of a large golf ball size cyst in the acetabulum. He made me stop working that day, as he said the hip had become unstable and a catastrophic event could happen at any time.
Nuff said, so off I went for revision surgery. He did a partial revision of the cup on March 6, 2012, with much drilling and filling of the cyst area using allograph. The surgery went well, and I had legs the same length again to boot !!
After months of therapy I was not able to get off the cane, and I had (as before) poor muscle strength at the surgical site, and my scar seemed to have no 'meat' under it, like if you touch the scar it seemed to go straight to the bone. The OS went back in and did muscle reattachment of all three glutes this past August. (I suspect that the muscles didn't work well after the first TRH and they were atrophied from long ago)
Fast forward to current status, 13 months post op, I am still walking with a cane, with a great deal of muscle weakness in the back and very distressing pain in the thigh ( I also had a torn meniscus in the R knee, and he repaired that four weeks ago).
I had a bone scan last week, and the results were 'hot spots around the prosthesis, suspect loosening, and particle disease". The OS said that since my surgery was just a year old, it was possible that the hip would continue to heal, and to come back in 4 weeks to follow up and discuss it further.
I am trying very hard to maintain a positive attitude, but it's not easy. I can walk without a cane but it is quite painful and after about 10 or 15 steps the limp gets worse, and it causes more pain in other areas such as the hips and spine. (I also have a fx L1 vertebra for 13 years, painful every day too).
Has anyone here had particle disease? Or two revisions in the same hip? I have done as much reading on the subject as I can find and the only literature I have read about treatment for particle disease is revision surgery. I think at this point I would rather eat ground glass than do that again but what other options are there ??
I am brand new here, but a hip replacement veteran with a new problem. Particle Disease. I need advice if anyone has some.
Quick Hx of my hip and I ...
I was Dx with avascular necrosis in 2001, underwent a core decompression in August of that year, followed by a THR in Feb 2002 after a spontaneous fracture. That replacement lasted 10 years and one week. I never experienced 'pain relief' in those ten years, and my first OS said it was bursitis, that my xays always looked 'fine'. So ... after a decade of relentless pain, I went for a second opinion, and the new OS did more radiology studies and dx was made of a large golf ball size cyst in the acetabulum. He made me stop working that day, as he said the hip had become unstable and a catastrophic event could happen at any time.
Nuff said, so off I went for revision surgery. He did a partial revision of the cup on March 6, 2012, with much drilling and filling of the cyst area using allograph. The surgery went well, and I had legs the same length again to boot !!
After months of therapy I was not able to get off the cane, and I had (as before) poor muscle strength at the surgical site, and my scar seemed to have no 'meat' under it, like if you touch the scar it seemed to go straight to the bone. The OS went back in and did muscle reattachment of all three glutes this past August. (I suspect that the muscles didn't work well after the first TRH and they were atrophied from long ago)
Fast forward to current status, 13 months post op, I am still walking with a cane, with a great deal of muscle weakness in the back and very distressing pain in the thigh ( I also had a torn meniscus in the R knee, and he repaired that four weeks ago).
I had a bone scan last week, and the results were 'hot spots around the prosthesis, suspect loosening, and particle disease". The OS said that since my surgery was just a year old, it was possible that the hip would continue to heal, and to come back in 4 weeks to follow up and discuss it further.
I am trying very hard to maintain a positive attitude, but it's not easy. I can walk without a cane but it is quite painful and after about 10 or 15 steps the limp gets worse, and it causes more pain in other areas such as the hips and spine. (I also have a fx L1 vertebra for 13 years, painful every day too).
Has anyone here had particle disease? Or two revisions in the same hip? I have done as much reading on the subject as I can find and the only literature I have read about treatment for particle disease is revision surgery. I think at this point I would rather eat ground glass than do that again but what other options are there ??