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New, 1½ years post op, still have pain

Discussion in 'Hip Replacement Recovery Area' started by avnhip, Feb 24, 2012.

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  1. avnhip

    avnhip New Member

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    THR left side, metal on metal. 1 1/2 year post op, still in pain. Has put me out of work. Right hip is now in pain. Had bone scan yesterday. Doctor is talking about replacing liner with plastic. Who knows whats going on with the right side,, well we know it's ANV just don't know to what point has it progressed. Since the first one has turned out to be not so good (dismal at best), not sure if I can handle another 2 surgeries. Opinions?

    :hairpulling:


    @Josephine:
  2. Jamie

    Jamie Administrator

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    Re: New, 1 1/2 years post op, still have pain

    Welcome to BoneSmart!

    First of all, be sure you are seeing an excellent revision surgeon who does a ton of revisions each year. It should not be the surgeon who originally put your first hip in. This is not to say this person was a bad doctor, but just that you need a new set of eyes on your situation....someone who is totally independent of the first surgeon. This means it cannot be a recommendation from the first one, he cannot be part of the same group, nor work at the same hospital.

    There have been some reported problems with the metal on metal implants and the idea of taking it out and replacing it is probably a good recommendation.

    Are you saying you have Avascular Necrosis (AVN)? I am a bit confused by your acronym...ANV....otherwise.

    I'm going to tag our forum nurse, Josephine, so that she can comment on your post.
  3. Josephine

    Josephine Administrator

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    Re: New, 1 1/2 years post op, still have pain

    If you have a metal on metal hip, you need to get yourself checked out as there are problems arising with them. But I suggest you do as Jamie suggest and find a really good revision surgeon to do it. I suggest you read this but do keep in mind that there are more people with no problems than there are with them Metal on Metal warning (old news)
  4. avnhip

    avnhip New Member

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    Re: New, 1 1/2 years post op, still have pain

    Typo, AVN is correct. At this point I feel I would be stepping on his toes and am about to lose insurance. He's also the guy who says yea or nay on my disability claim to the Gov. And if the truth be known, one of the best, if not the best, in town for hip surgeries. Runs the units at 3 hospitals here. The only 3 that have dedicated hip recovery unit floors. Time is running out. Will know more after I get results from the scan. Thank you for your advice, will speak with my neurologist and endocrinologist about options. If you read into it there are some complications.
  5. tashia

    tashia Sr Bonesmartie

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    Re: New, 1 1/2 years post op, still have pain

    Typo, Hand in there. I hear you having a very had time and right now I hear you are having a hard time thinking positive. Please remember to take a deep breath and we do care. Welcome to the sits. We do care here. Please keep us posted. :doggieshmooze:Tashia:console:
  6. Jaycey

    Jaycey Moderator

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    Re: New, 1 1/2 years post op, still have pain

    anvhip, so sorry you are in pain. Please do let us know the results of your scan. Indeed - it sounds like you have a lot on your plate!
  7. Josephine

    Josephine Administrator

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    Re: New, 1 1/2 years post op, still have pain

    Would you like me to correct your Username?
  8. MarkC

    MarkC Member

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    anvhip, I know where you are. I amjust over 1 1/2 years out myself and still have pain. I also have metal on metal depuy pennacle and had a top notch surgeon do the work. At about a year, we did an mri of my back to make sure that was not the problem and it was not (did have some stenosis but back specialist said that it was not enough problem to cause my pain). He actually sent me to a different sergeon who is also very well respected at Duke. We took blood and analized for elevated cobalt and chromium levels. Mine were a bit high but not overwhelmingly so. Since they were slightly elevated, we had a new mri done of my hip and also took a little bit of the fluid (there was actually very little). With all the testes I have had, there is no evidence of metalosis (psudotumors or any of that stuff) and so we are not pressed for revision. I do have lots of soft tissue problems I think, not the least of which is the iliopsoas tendon aggrivating me. We may very well do a release of that tendon but other than that, I am not sure what we will do. In all of this, my left one has started to aggrivate me some as well. Just try to hang in there.

    I would have been glad to go back to my OS (that did the surgery) but the back guy said he thought it might be best to have a different doc take a look. And he knows my original OS and of his reputation as a top notch surgeon. I went because I thought he was right. All this to say that I think sometimes, it is hard to tell exactly what is wrong and there are many variables..not to mention the metal on metal thing. I was quick to blame the metal but that may just prove to not be the problem (I hope).

    We just don't know for sure. I feel you bro. Keep us updated on your sitch and I will keep you updated on mine and tell you what I learn. M
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  9. Lindawalms

    Lindawalms Graduate

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    I hear you on the AVN and the 2 more surgeries - very similar to my story - so sorry - it is not pleasant but the end result is what you should TRY to focus on - in a year it should all be behind you and you should be living pain-free...I'm the first to react negatively to more surgery but try to look at big picture!!!
    xoxoxo,
    Linda.
  10. avnhip

    avnhip New Member

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    Just got back from Doc visit, bone scan looked great as far as new hip goes. Said I'm falling in the group of "don't knows" and wants to wait more time before doing anything. Sad to say he did comment on my right hip, the femur on the verge of collapse and will need replacement sooner or later. Saw it with my own eyes, commented on how he would approach and proceed in a different technique if or when the time comes.
    all for now
  11. MarkC

    MarkC Member

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    I am in same sitch with my mom hip. Doc says almost the exact same thing. Although, I may indeed get the iliopsoas tendon released as we know that is causeng pain. Hang in there. I see my OS at the end of the month as my thyroid is now almost back to normal numbers. Whether or not I get the tendon released, I am very interested in what my metal ion levels will be in July when I have them tested again. My left hip is bothering me now too but still plenty of space.

    I can tell you that I am trying cymbalta for pain and will report back if it helps a lot. I tried other things and finally gave in. I don't really want to take an antidepresent but my Primary thought I might give it a shot to see if it could help me. I will keep in touch. Mark
  12. avnhip

    avnhip New Member

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    Cymbalta made me loose my mind, my job for 20 years, and almost my life. Yea it works but the side effect????
  13. MarkC

    MarkC Member

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    yikes, can you share the side effects that you are speaking of? I have not been on it long at all. It made me really sleepy at first but that has stopped. I can still feel it a bit but am trying to give it a chance. It would be helpful to me if you could share. Thanks, M
  14. avnhip

    avnhip New Member

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    At first I didn't notice anything, then some pain relief for about two weeks but started to get agitated, temper really short, then two weeks of black out for the most part.. They found be in my desk/corner sharpening a knife. They said I hadn't made any threats. just that I didn't look rite. Wouldn't drug test me. Said Ishould not have that big of a knife at work. 7 other members had the same knife and all of them had been disposed of before security came for me. Has some strange Ideas in my head for the next month. Never will take that type of med again :hate-shocked:
  15. Josephine

    Josephine Administrator

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    I've heard stories like that before. Scares the bejeebers out of me!
  16. MarkC

    MarkC Member

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    I did decide to get off of it for the time being but not because of any adverse effects. I have an appointment with my OS at the end of March and I want to see exactly how I feel with my thyroid numbers normal. I don't really know because I started taking it before they came down.
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