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Core decompression

Discussion in 'Hip Replacement Pre-Op Area' started by Bonnie91, May 9, 2013.

  1. Bonnie91

    Bonnie91 New Member

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    Hi.. I'm from Macedonia and I'm sorry for some mistakes because I'm not so well in English but I'm sure you will understand me.

    I had pain in both hips in the beginning of September not to mention that I was diagnosed with lupus at 14 years. I'm now 21, and my doctor for lupus said that the pain is from ligaments. In November, the pain get worse so at the end it turns out that is AVN.

    That we discovered in the middle of January and the orthopaedic surgeon said to me to rest for 2 months, so okay I rested. After 2 months I went to him and he said another 2 months to rest. Meanwhile my mother went to him to tell him that I'm in big pains and he said to her to rest (I forgot to tell you that rest means to him laying all the time in bed and no walking without crutches) at least 4 months. I got nervous so we sent all the documentation in Turkey because in this country there are no doctors! The orthopaedic surgeon from Turkey said that in his opinion I have to have a core decompression in both hips and that will cost me 22,000 euros.

    I don't know what to do I'm laying in bed for 4 months, I'm depressed that surgery cost a lot, that's far too expensive for me and my family, but somehow we will find a way to pay. But if that is not a solution I don't want to expose my family to all that and to expose me to all that pain if the pain will return and at the end my hip will collapse.

    So I'm confused what to do (to do core decompression or hip replacement) because I'm too young. From September till now I'm worried laying in bed and doing nothing. I lost my year in university, I can't go out acting like normal person, doing normal stuff for 21 year old.

    With your experience what will you tell me, you know how people said "ask the man who suffered, not the man(in this case doctors) who guesses".
  2. Poppet

    Poppet Honourary Moderator

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    Welcome to BoneSmart Bonnie91, I have moved your thread and post to the Hip side of the forum to ensure it doesn't get mixed up with the Knee folk.

    Wow, four months bed rest, that certainly would weaken your muscles and your spirit. No wonder you are depressed to be so restricted at 21.

    Here is a link to the library article regarding a Core Decompression for you to read, but I will also tag our Orthopedic Nurse, Josephine, to come have a chat. Josephine

    http://bonesmart.org/forum/threads/core-decompression-of-the-hip.6383/

    I am pleased you have joined the forum, we are here to support you.
  3. Josephine

    Josephine Administrator

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    Well, I think you've done really well with your English! I have edited your post for easier reading though.

    Some things I certainly wouldn't recommend:
    1. 4 months bed rest will get you nothing. It's not going improve anything and might make things worse because that much enforced rest will lose muscle bulk, bone density and general fitness and well being
    2. the core decompressions really don't work and anyway, that's an awful lot of money to pay out when there is about a 90% chance you will need hip replacements a few months down the line anyway
    3. it doesn't matter that you are only 21. Lots of people in their 20s have hip replacements. Look at this young lady Dancing after THR: 4 months pics THR.

    I don't know how your health system works in Macedonia. Did you really mean there are no doctors in Macedonia, or just no hip doctors? I'm also curious why you sent your notes to Turkey - why not Italy, Switzerland or Germany? They have really excellent hip surgeons in those countries.

    You also need to search out a an orthopaedic surgeon who specialises in "arthritis in the young adult" because you are exactly the kind of person he treats and it's almost inevitable that he will be prepared to do both hips for you, maybe even at the same time!

    I hope all this helps. Please feel free to ask more questions if you wish.
  4. Bonnie91

    Bonnie91 New Member

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    I'm just laying in bed and nobody tells me nothing, I don't even know what stage is my AVN. This morning my mom called the orthopaedic surgeon who said to lay in bed. She told him that I'm in pain and he said on Thursday he will see us so we will see what he has to say. In addition my knee hurts and he said it's nothing like he said for the hips. He said with laying everything will pass when we went last time.

    Orthopaedic surgeon from Turkey said that for the knee he will need to make Arthroscopic fixation OCD (right strings). And I don't understand why my doctor here won't do this for the knee because I read that we have this Arthroscopic fixation. On Thursday I will talk with him sincerely that I can't continue like this. I don't know, maybe he wants money, maybe he is corrupt doctor.

    I'm not afraid of the hip replacement I just want to live normal soon as it can. From my knee I limp and it hurts and he said lay and it will pass with laying, when the pain will pass and everything will pass.

    Josephine, we don't have doctors, they all are corrupted rarely who is real doctor who cares about patients. If you see our hospitals you will be shocked. There are lines of patients and crowds. Doctors don't act like they should they act, like I'm above you, you're nothing, because most of they work in state hospital and in private hospital. People who have money go in private hospital and they have attention and in state hospital you are trash. I'm saying this only for attention not for treatment, because if you have more complicated disease they don't know nothing you have to look for your treatment in other country. It's really sad and if I ever go from Macedonia it will be because of the health care.

    I didn't mention how I get my AVN. It was my lupus doctor, he said it's ligament, it will pass. If she was really lupus doctor when I said I have pain in my crotch, she will know and she will send me to have an MRI scan but no, she left me like that and so you see I'm in pain for 9 months.

    We contact Turkey because in Macedonia we have a hospital named Sistina (Acibadem) which is Turkey's hospital and they contact the orthopaedic surgeon from Acibadem hospital in Turkey. We don't have how to contact hospitals from Italy, Switzerland and Germany. We send also to an orthopaedic hospital in Montenegro and we wait for answer. Also we will go in other city called Ohrid here in Macedonia in Monday, people said to us that hospital is really good for conditions and to see what they will say.

    However core decompression is not available in my country and I don't have to do that operations because like you said there are small chances of success. So I think that hip replacement is the best options. I's too bad that my both hips have AVN but that's life. I can't wait any more so I have to make decision till 20th this month. If I make the hip replacements, I hope that at the end of the summer, I will run and continue fitness. I can't hardy wait to exercise, I'm that kind of human who can't sit home hahaha

    I hope that everything will be okay and I'll be like that girl in the pictures you send to me. Josephine, I admire her and I have to admit I had a smile on my face whey I saw that legs in air hahaha. I got motivation.
  5. Bonnie91

    Bonnie91 New Member

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    I also uploaded the answer from Turkey.

    Attached Files:

  6. Josephine

    Josephine Administrator

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    He wishes! No it won't!
    Well, there you go - a lupus doctor is not a hip doctor and he knows nothing about hips!

    I agree your hospital system sounds dreadful. I so wish there was something else you could do to get this treatment.
  7. Jamie

    Jamie Administrator

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    Bonnie, if it's just that you don't know how to contact hospitals in other countries, maybe you could do some internet research to find a couple and contact them via email to see if they would take a look at your records....if you can get copies of them. If not, maybe they would agree to see you if you could get to that country.
  8. Bonnie91

    Bonnie91 New Member

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    I know that a lupus doctor is not a hip doctor but if he treats lupus and gives high dose of 60 mg corticosteroids to patients he will know contraindications of high dose corticosteroids isn't that right?
    I think that I don't have much time to wait for another opinions because my pain is bigger every day, all I left is to do hips replacement in some good private hospital where they will take care of me and to make good operation. We will wait this week that comes for the answer from Montenegro and we will go to that another city in Macedonia - Ohrid to see their opinion in monday and in thursday from that doctor who said with laying in bed everything will pass and that's it I'll decide. I'll write here what all they said and what have I decided. :)
  9. Jaycey

    Jaycey Moderator

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    Hi Bonnie - welcome to BoneSmart! I agree with your plan. I wouldn't waste any money on decompression. We can't predict in your case but we do see many decompression patients who have to have hip replacement after decompression. You are too young to go through any more pain. I wish you all the best in finding that surgeon who can help you!
  10. Bonnie91

    Bonnie91 New Member

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    Hi.. I made core decompression on my right hip only without graftting only cleaning inside my hip on 3th june and I'm on crutches about 3 months I don't feel any pain with crutches but I'm standing 50% only on my operated leg. Also € need to be careful on my left leg because the both hips are diagnosed with avascular necrosis from high dose corticosteroids. I'm 21 years old I writed onse here about what should I do and I decided to do core decompression. My question is if this core decompresion is successful is this final solution for my right hip?
  11. Jaycey

    Jaycey Moderator

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    Hi Bonnie91 - I merged your 2 threads into your original one. We like to keep all your posts in one place so that we can have a history.

    No one can predict if your core decompression (CD) will be the final solution for your hip problems. For now it sounds like you are doing well. Keep following your surgeon's instructions. Any restrictions including using your crutches are very important for good results. Please keep us updated!

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